Try and not let the CA 19-9 test make you that upset. My daughter, Lauren's oncologist says he looks more at scan results and what is going on rather than that test. Hers goes up and down all the time. If you worry too much, you will make yourself sick. That is good if you don't get side effects from chemo. That means you are handling it well. Lauren doesn't have near the side effects most people have from chemo, but she has had a great deal of shrinkage in her tumors. I know it is hard to not freak out about stuff, but please try to relax. Scans will tell what is going on soon enough. If you are not happy with your treatment, why not get a 2nd opinion to put your mind at ease. I am hoping and praying that you have great scans and a lot of shrinkage. Take care.
My beautiful daughter, Lauren Patrice, will live on in my heart forever.
My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.