Thank you, Lainy, for your quick reply. God, I always loved the americans ... people of action. I am the same, no time to loose.
For short, because I am so tired now, walking kilometers per day in this Leuven hospital.
The CC it is iside the liver tubes, perihilar like they say. At the time of diagnose, the primary tumor was 17 cm large, with hepatomegaly and splenomegaly and metastasis to the hepatic lymphnodes around the liver and to the thymus. There were no metastasis to the liver or other organs then those that i mentioned. They gave to him 3 months to live, without treatment.
Now the treatment, very short: 1.Gemcitabine/Cisplatin; 2. SIRT with Yttrium 90 spheres; 3. 5-FU/Leucovorin; 4. one time FOLFOX 6.
He supported everithing magnificent I can say, considering. He had some side effects but nothing serious. Just tiredness and a bit of loss of concentration.
Now, the Gem/Cis worked fantastic. No metastasis anywhere, prymary tumor reduces to 6 cm. But, i forgot to meansion a thrombose in the portal vein, but not to worry.
After, SIRT and 5-FU leucovorin didn't work at all. More than that, some other litle tumors appeared in the liver (3 of 1 cm each of them).
In this condition, they had to start imediately FOLFOX 6 - this time under supevision and hospitalisation. It did very good. The last MRI was validated 3 days ago and it shows stability of the tumors and even a slight shrinking of all of them.
But now we are fighting with another serious thing - ANEMIA DUE TO CHEMOTHERAPHY. It is very severe - hemoglobyn today was 7,2. Thay cannot continue with chemo. When they gave him FOLFOX 6 the hemoglobin was under 9, but they did it together with blood transfusion 3 x 250 ml and one long term EPO. Now they want to send Guy at home for recovery of anemia and then an MRI at the begining of October , already programed. Now i am scared to get out from the hospital at home.
Ok i wrote already so much, i didn't realise.
What do you think until now Lainy?
Should i be scared?
I am not so easy scared and i am a powerfull and strong woman, it is just a tought.
I would like also to start a forum about ANEMIA DUE TO CHEMOTHERAPHY, because it seems that is very serious and alot of pacients with long term chemo will have, and they are not given treatment for it. And that it is very dangerous and can put in jeopardy all those wich have still chances to survive this illness.
Oh, i am tired, but so happy to finally be with you people. Who can understand you the best?
Thank you for your attention,
I embrace you all with love and care, Liliana