Entry for January 30, 2008
Jim has been enjoying the view from his home the past 5 days, but it seems his health declines daily. He has had caregivers there 24 hours a day, but they do not provide medical assistance. The Hospice workers come in several times during the day to perform the medical duties and are supposed to train the family members these functions until they feel comfortable in wholy leaving the medical attention to the family members. I was planning on taking off work for awhile and go down to perform these functions since Carole's eyesight, though better, does not allow her to feel comfortable handling the IV needles and drain. I was also going to help the caregiver in getting him out of bed and or chair for walks and restroom breaks, since as you all know Jim is a tall guy and needs some leverage to get him up, especially with the severely swollen (edemic) legs hindering his ability to do it himself.
All that has changed now. The social worker Carole has been working with strongly suggested he be admitted to a facility for round the clock Hospice care. The problem was finding a place which wanted to be responsible for the care he needs. As an answer to prayer and some connections with the Hospice worker, a place was found in Salisbury, Maryland that had availablility and he is being transferred today. The facility at Coastal Hospice http://www.coastalhospice.org/ seems like it will be a nice place for him and will provide the care he needs. It is about an hour from where Jim and Carole live in Rehoboth Beach. A bit of a hike for daily trips, but close enough to go and visit at any time. I still plan on taking some time off to help give emotional support for my mom and spend time with my dad.