Topic: new here

Hello,my name is Lynn,my husband has cc.his trouble began in may when he had a gullbladder attack and needed it removed.Two day befor surgery,they done an ercp to try to remove some gull stones and found his common bile duct was completely blocked,then put a stent in and took a biopsy,they said it was a small stone blocking it because a surface biop came back neg.He had gull bladder removed that went well,two months ,in the beginning of july he was back in the hospital for acute pancreatitus ,he got better after 5 days in hospital,three weeks later,he was back in for high bili rubin levels nausea and jaudance,(SP).he had the stent replaced with a medal one,thats when they found the distal tumor in the lower part of his bile duct close to  the head of his pacreas.we saw the oncoligist and are under going testing to see if he can have the whipple surgery,we wont know that until the 20th of sept.i see him getting worse everyday,hes in alot of pain in his back at the moment,im so lost   right now,im in a daze,i cry and cry when he cant see me,im trying to hold it together.thank you for reading and being here..

Re: new here

Dear Lynn, welcome to our extraordinary family but sorry you had to find us. I am very sorry to hear about your husband. The site of his CC is almost exactly where my husband had his. Teddy's was contained in his bile duct valve where it connected to the head of the Pancreas.  Teddy also had the Whipple. I know you feel like you have been hit in the stomach with a baseball bat but strength is what will get you through. Where is your husband being treated? You want to make sure he is seen at a Major Hospital/Cancer Center  where they have a lot of knowledge about CC and also in performing the Whipple. Knowledge is our most powerful weapon. One week Teddy had his tests and the next his Whipple. Are they giving him anything for pain? That is the first priority! Unbelievable but you are the 3rd newbie today from Florida! I know others will be along to welcome you and give some added advise. IF at any time you are not comfortable with what is being done we always recommend 2nd and 3rd opinions. You never know how strong you are until "strong" is the only choice you have! You are not alone, we are all right with you.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

3 (edited by LynnD Thu, 06 Sep 2012 10:18:06)

Re: new here

Hello Lainy,and thank you for the welcome,i am very grateful for this site and all its members,My husband is being seen by a Dr,who specializes in this type of cancer from Lakeland regional cancer center,he is a wonderful and experienced dr who has performed many whipple surgerys.We will see what the 19th brings when he sees Dr molina again.He goes for a catscan on the 10th.Yesterday,he went to the surgon who performed his gull bladder surgery because of pain in the corner of his incission,turned out to be a disolveable stitch that didnt desolve and it was poking him,my husband did ask some questions about the cancer,and if he ever done the whipple,turns out he has done quite a few to.Well i need to fix some lunch,and try to get him to eat ..again thank you.

Re: new here

Oh, this is good, Lynn, thanks so much for the answers. There is nothing worse then a stubborn stitch. I will be looking forward to the test results! Like my Teddy used to say, "Now we know what we have to do, let's get on with it!.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: new here

I will definitly keep everyone up dated.

Re: new here

Hi Lynn,

Welcome to the site. Sorry you had to join us all but am glad that you have done so. You've come to the right place for support and help and you will get buckets of both from everyone here! I know that you will have questions that you want to ask so please feel free to ask them and we'll do what we can to help in answering them.

I hope that your husbands test resultgs come back good and that he is able to have the whipples surgery. My dad wasn't able to have surgery of any type but we have many members who they or their loved ones have had surgery and I know that they will share their experiences with you.

I know you say that you are in a daze and are trying to hold everything together right now. But please know that you are not alone now and that we are all here for you. We know what you are going through and we care. Please keep coming back here.

My best wishes to you and your husband,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: new here

Thank you Gavin.i do hope he can have the surgery to and soon,he has does not want to eat again,he tried a little bit today,but could'nt.im glad he took a few bites tho,can any one on here suggest anything his stomache may tolerate?anain,thank you for the welcome,and being here.

8 (edited by eli Thu, 06 Sep 2012 18:54:36)

Re: new here

Lynn, welcome to the forum. I am sorry that you had to find us.

Have you tried nutritional drinks like Ensure or Boost?

My wife was stented for 10 weeks before her Whipple surgery. She had trouble with most foods, but she was able to tolerate Ensure reasonably well. It's a complete nutritional drink, meaning it contains most nutrients that our bodies need.

I hope your husband is able to have the surgery. My best wishes to you both.

Eli

ADDED: If you are going to give Ensure a try, don't drink the entire bottle at once. It's just too much. Try one third of a bottle and see how it goes. If it tastes too sweet, add water.

Re: new here

Lynn....do you know why it is that your husband does not want to eat? Does he feel bloated or is he nauseous?  Is he taking something for his pain?
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: new here

Hi marions,the reason George can't eat is because of nauseous.he got medication for that,and tried to drink a milk shake,but couldnt'he said it hurt his belly.He is on pain meds.thanks for the hugs.

Re: new here

Hi Lynn,

Sorry to hear about George's nausea. My dad had that too quite a lot and it is unfortunately very common. For my dads nausea, he tried a wide variety of and combinations of varying different meds, some with better success than others. How long has George been taking the anti nausea meds for and are the ones he is taking right now the first type that he has tried? If so, it could be worth discussing this with his doctors to see if they could try a different type or even combination of meds. Just a thought.

Here's a link about nausea and meds etc that may be of interest to you -

http://www.macmillan.org.uk/Cancerinfor … 6_Anchor_1

I hope that he can get some relief from the nausea real soon.

My best to you and George,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: new here

Lynn....has he had any bowel movements?  Also pain meds can cause constipation.  Is he walking around a bit? I
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: new here

marions,yesterday he had a bowel movement,he dosnt walk around much,just from bed to recliner to front porch,the nausea meds he just started taking today,so hopefully they work,its just one,zulfran,he took it a few minutes ago,but started hurting in his belly so he went to lay down.

Re: new here

Lynn, not so sure milk products that good for Nausea. I would suggest white soda, tea, clear broth, toast and perhaps soft scrambled eggs. Work his way slowly upwards until he can digest more. That nausea is awful and Zofran should help.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: new here

Lynn...I agree with Lainy.  Try small (very small) bites of foods easy to digest. Same goes for liquids. I attended a seminar on digestive issues; it had been mentioned, small, easy  to digest meals, movement thereafter is very important and at times it might be best to eat while standing up.  With time you will know what works best.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: new here

george will ear grits,but only a few small spoonfull,he didnt drink the milk shake 3 sips at most,once it got to his stomache he said it hurt to bad,anything he takes in,even water,he says it hurts.I got him some boost,so,maybe later when he gets uo,he will try it.Im very scared now,hes worse with the pain today and nausea,everyday seems to get worse,i said to him,let me take you to the hospital,he said no,baby,i'll be ok once the nausea medication starts working.....Thank you all so so much from the bottom of my heart for all your replys and kind words...Lynn

Re: new here

Lynn, PLEASE...if the nausea and pain is not better by tonight I would take him to ER. You are in charge now and know best. The Zofran works pretty quickly. He should not be in that kind of pain and perhaps needs to be seen!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: new here

Thank you Lainy,i already told him i was,i got a question for you,should i take him to the hospital that his cancer dr is,or to the one where this all began?

Re: new here

My guess would be to take him where he has been as they will have all his records and can call his doctor if needed. Good girl and be strong!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: new here

Hi Lynn, Just wanted to welcome you as well. I hope you have found some success with the nausea. Ginger is good for nausea. Sending good wishes that George is able to get the whipple surgery. Hugs. Nancy

Loving my husband from afar.