1 (edited by Joteach Wed, 12 Sep 2012 17:54:09)

Topic: Questions to ask doctors

As I posted last week, my resection couldn't take place because during the laproscopic look they found lesions on other parts of my liver.  I am meeting with my oncologists at Mass General on Friday, and resuming my chemo as part of the clinical trial I am in.  It did help shrink the big tumor quite well, so I am feeling okay about this.  I don't understand, however, why it didn't get rid of the lesions (that we didn't even know were there.)
I know I am not a candidate for surgery while there are other tumors, or radiation because they can't see the lesions on the scans.  What other treatments, besides chemo, are out there for someone in my situation?  How can they pinpoint the lesions if they can't see them?  If we can get rid of them, I can have a resection or radiation on the main tumor.
I have been trying to read whatever I can about chemoembolization, freezing, etc. but I honestly don't know which, if any, can help me.  Has anybody been in a similar situation, and if so, what was your treatment?
What questions should I ask the doctors?  At this point, I am so confused.
Thanks for your help!


Re: Questions to ask doctors

Joanna, I am sorry but I can't help with your questions as Teddy never had anything like this. He had the Whipple. BUT, with that said, I am walking along side of you all the way!


Re: Questions to ask doctors

It depends on the size of the lesions; most likely you will have to wait for the next Ct scan in order to get a better picture of the liver.
If you really want to; 2nd opinion by an interventional radiologist  at MGH to see whether radioembolization can be done is recommended .
With regard to the size of the lesions vs the sizes of the  bead that contain Y90. If the size of the bead is small enough to go into the lesions and if you have no metastasis anywhere in your body except the liver ; your liver reserve is enough and the leakage of Y90 is less than 20% to your lungs; radioembo may be of value to take a look.
in the experience forum of this message board under radiation treatment and options,there are a lot of info within the last 6 months about radioembo that you can take a look.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.