Topic: Can we provide a beacon for those in this battle?
It has been a while since I last posted. My brother Bruce (originally diagnosed with CC 3 years ago and given 4 - 6 months to live) is still hanging in there. It has been a wild ride! He is actually back in the hospital as of last evening with what appears to be an infection, so any prayers that can be made are appreciated.
His complete story is posted here: http://www.brucehaney.org/Page/42
I also posted about what we have learned over the past 3 years here: http://www.cholangiocarcinoma.org/punbb … hp?id=6261
What I was hoping to accomplish today...as a way of generating hope for those in this battle...was to provide a list ("beacon of hope") of those who have been able to continue this fight past the 3 year mark. I think that there are several people posting on this board who have hit 5 or 7 year milestones...and I think that we have someone on here who has made it to 15 years. Can we get a list together of those who are hitting these big milestones? It would be good for everyone who is starting out fighting this horrible disease...and for those in the battle for several years...to know that there is "hope" always. I told my brother several years ago about the person on this board who hit the 15 year milestone, and every so often Bruce says to me, "I want to be like that guy that made it 15 years."
Hope is a precious weapon in fighting this battle...and I am hoping that we can provide a beacon of hope to all by providing a more comprehensive list of those who are maintaining and treating this disease more as a chronic illness. Please reply to this post if you have hit a big milestone that we can share...
God bless all of you!!!