1 Topic by marions (edited by marions Sun, 30 Sep 2012 12:13:34)

  • Registered: Fri, 12 May 2006
  • Posts: 8,312

Topic: Multidisciplinary Second Opinion Centers

For those wanting to share their experience with one or more of the below mentioned centers - this is a good place to do so. 
Thanks a bunch.
Hugs,
Marion

http://blochcancer.org/resources/multid … n-centers/

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • From: Hilton, New York
  • Registered: Fri, 15 Jan 2010
  • Posts: 737

Re: Multidisciplinary Second Opinion Centers

I had my treatment and my oncologist and surgeon are both at the Univ. of Rochester Cancer Center     (585-275-5830).  It's also called Wilmot Cancer Center.  It's a lovely facility and I had excellent care.  This is my local hospital (I had both of my babies there) so I also got second opinions from the Mayo Clinic in Mn. and Roswell Park in Buffalo NY, both of which confirmed that I was being offered the correct treatment protocols. 

Never ever hurts to get a second or third opinion if this is what you want to do.  For me it was more of a sanity check.  I wanted to know that I was getting the best care and I found out that I was.

Survivor of breast cancer (1994), thyroid cancer (1999), cholangiocarcinoma (2009).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.
  • From: Hilton, New York
  • Registered: Fri, 15 Jan 2010
  • Posts: 737

Re: Multidisciplinary Second Opinion Centers

I also met with both a Gi doc, medical oncologist and a radiation oncologist who were all in contact with my surgeon as well.

I also wanted to add that having an internist who is second to none.  Who met with me at the end of the day one day each week for as long as I needed her to.  Who calls me at night the day of my scans or blood work with the results so I don't have to wait.  Who just calls to see how I am.   She is truly a godsend and I don't know how I would have gotten through this without her support and expertise.  She referred me to my GI doc (who is also fabulous and caring).

Having a good "coordinator" is a real plus when navigating the medical system, whether it's a social worker, an internist, a specialist who gets involved, or just a lay-advocate.  To me this is key along with being an informed patient.

...just my thoughts

Survivor of breast cancer (1994), thyroid cancer (1999), cholangiocarcinoma (2009).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.
  • Registered: Fri, 12 May 2006
  • Posts: 8,312

Re: Multidisciplinary Second Opinion Centers

Thanks, Randi, I just knew to count on you. 

As we continuously strive to improve on providing updated information, I thought for this particular thread to be helpful for those seeking 2nd or more professional opinions from a "multidisciplinary" team.

Thanks again,
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • From: Hilton, New York
  • Registered: Fri, 15 Jan 2010
  • Posts: 737

Re: Multidisciplinary Second Opinion Centers

Sorry I was so long winded Marion!  smile

Survivor of breast cancer (1994), thyroid cancer (1999), cholangiocarcinoma (2009).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.
  • Registered: Fri, 12 May 2006
  • Posts: 8,312

Re: Multidisciplinary Second Opinion Centers

Are you kidding?  I love it.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • From: Akron, Ohio
  • Registered: Mon, 11 Apr 2011
  • Posts: 449

Re: Multidisciplinary Second Opinion Centers

My treatment has been at The Cleveland Clinic Taussig Cancer Center in Cleveland, Ohio. I have a brilliant liver surgeon, Dr. John Fung, a wonderful oncologist, Dr. Bassam Estfan and a superb radiologist, Dr. Kevin Stephens. They work together as a team providing me the best possible treatment options. We also got a second opinion from Dr. Javle, MD Anderson. My records were sent to Dr. Javle and then he consulted with Dr. Estfan in Cleveland and they both agreed I was on the right treatment plan. I have been very pleased with the care at The Cleveland Clinic Foundation.
Lisa

Everyday is a gift

lisacraine's Website

  • From: Metairie, LA
  • Registered: Tue, 09 Oct 2012
  • Posts: 105

Re: Multidisciplinary Second Opinion Centers

Lisa - My wife has CC which spread to her liver and a single lymph node.  She was operated on four weeks ago at Ochsner Hospital in New Orleans and it appears all her cancer was removed, but she must have chemo treatments.  We have an appointment with an oncologist at Ochsner later this month to set up a treatment, but would also like to get a second opinion from Dr. Javle at MD Anderson.  Do you have any details of how your doctor arranged for Dr. Javle's second opinion and how he was paid for his service.
Bruce

Please be advised that any advice or information in my posts is my personal opinion only and is not intended nor implied to be a substitute for professional medical advice.  ALWAYS seek the advice of your physician or other qualified health care provider.