Topic: Update on trial at NIH

I just returned home from my 4th checkup since my initial treatment in April on the GI-TIL trial at National Institute of Health. I have officially reached the partial response rate of 30.06% and am now considered a success and the first one to be successful!!!! I seem to be averaging about a 7% shrinkage rate on my tumors each month without any treatment other than the initial treatment in April. I feel amazing and am so happy this has been working! I just wanted to update with the news! God Bless...Melinda

Re: Update on trial at NIH

Oh, Melinda, this is such great news! It is people like you who give this whole Board the hope it needs and deserves! Keep up the good work and please do keep us posted, this is so exciting! YIPPEE!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Update on trial at NIH

Melinda....fantastic news.  Congratulations.  Melinda, I am wondering: When initially reported, you mentioned that eight people had enrolled in this trial. 
http://www.ncbi.nlm.nih.gov/pubmed/19304471
Out of these eight people, how many are treated for epithelial cancers? And, do you know whether other patients had also received prior chemotherapy? 

Again, you deserve a big hug for the impressive response to the treatment of the immune system.

Thanks so much for sharing this important information with us.   

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Update on trial at NIH

Marion,

I am not sure of the exact types of GI cancers the eight before me had. All I know is that I am the first and so far the only Cholangio participant. I believe the others had received chemo, I think that is one of the requirements of the protocol. The trial information is listed at the following link and the protocol ID is 100166
10-C-0166, NCT01174121
or you can search GI-TIL
http://www.cancer.gov/clinicaltrials
Please let me know if you have any more questions.
Melinda

Re: Update on trial at NIH

Thanks much, Melinda.  I will try to reach the investigator.  So glad that things are working out so well for you. 
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Update on trial at NIH

That's great Melinda! Just the news we like to hear! Thanks for the uplifting update! Nancy

Loving my husband from afar.

Re: Update on trial at NIH

That's WONDERFUL news!!  Thanks for sharing and bringing so much hope to all.

Willow