Topic: First post
I've been reading the posts for a while and finally joined it. My husband has been diagnosed with stage IV cc/possibly pancreatic cancer on 10/26/11. He has also spots on liver, tail of pancreas, spots on a spleen and grapefruit size omentum mass. They only biopsied omentum mass and determined it was metastasized, with primary most likely in bile duct. He had gemzar/cisplatin for 6 months, then xeloda, then folfirinox. With folfirinox - Ca19.9 was going up, then down, but last result - went up again. During last 11 months his CA19.9 was as high as 24200, as low as 2290 back in March and now 12350. I have read in doctors' notes that folfirinox was the last attempt to slow cancer down. We haven't talked to his doctor since we found out about the cancer marker and I'm afraid he is not going to offer anything else. Just wondering if anybody had similar experience and what else could be available. I'm guessing doctor will order another CT scan, since his last one was back in May. My husband just had chemo (folfirinox) on Monday and has been having a lot of pain since yesterday. He is on fentanyl patch 100 mcg and after I called his doctor's nurse - doctor doubled it to 200 mcg as of today. So far it's not helping, even with additional Oxycodone and lortab. Husband refuses to go to ER. He has been also getting TPN for the last month, since he is pretty much stopped eating and barely drinking. Any advice is appreciated!