Topic: This sucks!!!
I haven't posted for a while, but I am so frustrated and overwhelmed feeling that I have to vent. SO it's been 5 weeks since my MIL was disgnosed with inoperable stage 4 CC. She just finished her 2nd round of oxi/5fu. She takes percocet every 4 hours and is on a fentanyl patch because her pain is so bad. She also hasn't eaten solid food for almost 5 weeks ( except for 1/2 a bowl of cereal 2 days ago) She says that she just can't eat...just sounds too awful to put food in her mouth.
This waiting game just sucks!!! I HATE IT!!! I just want some answers and I feel that the oncologists we have met just sugar coat everything. I know that we have to be positive...I am trying, but I am a nurse and also realist and I just don't think things are looking good. I absolutely HATE being the "medical" person in this situation. Please don't think I am this dark cloud. I DO believe in miracles. I AM the "HALF-FULL" person!!!
I know that denial is the first stage of grief, but I feel like my husbands' family just needs to be a little more realistic.
They bought $500 tickets to see Barbra Streisand in a month from now, but didn't get her a box where she can possibly bring a wheelchair. She can't sit up longer than 5 minutes right now because of the pain, but they expect her to sit through an entire concert? When I mentioned getting her a reclining wheelchair for the concert- my father n law looked like he wanted to rip my eyeballs out. Once again- I'm the "negative one" in the family. I just want her to be able to enjoy herself. I told him that if I had a broken leg and wanted to go to a concert that I would go in a wheelchair too. What's the difference? She is sick! This is just so hard. SO HARD!
Do they wait until the 8 weeks is up to do another CT? Did anyone ever have a doctor say the chemo was working or not workng before the whole regime was over? I am rambling and I am so sorry. I know there are no exact answers and I don't really expect them...just had to vent
Thanks for listening,