Topic: what now

Social worker just came in and said Dr ordered hospice they will be here soon,oh god what now,I need help,I'm losing it.

Re: what now

Lynn....call me.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: what now

Hi Lynn, my husband is on hospice at home and I can tell you that's it's a huge relief to have them involved.  We hav 1 dedicated nurse and she has done a tremendous job in helping to keep Dan comfortable.   Also you can call them 24/7 for help.  Before I felt that I was in limbo and all alone making every decision.   

I'm sorry for what your going through. Sending you lots of hugs of support and strength.   

Laurie

Re: what now

Lynn excuse me for posting this but I want everyone to know you are OK now. Lynn called me and she is really ok, it was the initial shock of knowing the ONC had called Hospice. Hospice is coming to the hospital to get them all set up to go home.
George wants to go home and sit on his gigantic porch!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: what now

Thanks Lainy for letting us all know that Lynn is okay. I can so understand the shock of hearing about hospice for the first time and I hope that they can get George home today so that he and Lynn can sit on their porch! Sitting at home  on your porch sounds good to me!

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: what now

Lynn, praying you and George get home soon and they can keep pain under control . I will imagine the two of you on the porch enjoying each other.
Hugs, Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: what now

Lynn,

I am glad you and George will be at home with help. I hope George will be more comfortable and be able to enjoy time on the porch. Thanks for letting us know about things, Lainy. I am sure Teddy is so proud of how much you help people. You are such a Godsend.

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: what now

good evening everyone,George and i just got home about an hour ago,hes much calmer here and not all hyper like he was in the hospital,which makes me more calm..thank you lainy for letting everyone know that i was ok.love you all for being here and helping me through this...hugs and blessings everyone ...Love Lynn

Re: what now

YEAH! Lynn and George, I can't wait to hear you sat on the porch! I am glad everything has calmed down and hope you both sleep good tonight!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: what now

Lynn....I am so glad to hear that you are home again. 
I wish for a restful night; you so much deserve it.
Hugs and love,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: what now

Lynn,
         I hope you get some sleep.It is so hard ,as we who have travelled the same path understand.It can feel very surreal as if in a parallel universe
   but ..take care                    Janet

Re: what now

Lynn,

I just found your posts and am glad things have settled down and you are calmer now.  Many of us have gone through what you are now and although none of it is easy, there is a lot of help and support out there to help you through it all.  Take care and know I am thinking of you.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.