Re: Response to Alla's posting

Thank you all. Marion, does it mean your husband had bleeding problem as well? Mine is still confused, sleeping a lot, lots of hiccups. Still waiting for his son to arrive. I think I'm handling second day a little better, with the help of my friend. I'll keep you posted. Sincerely, Alla

Re: Response to Alla's posting

Alla...yes, my husband also had bleeding problems.  I am glad to know that your friend is by your side and hope for quick arrival of Marty's son. 
My heart is with you,
Hugs and love,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Response to Alla's posting

Alla, we have had 2 good remedies for hiccups on our site. Teddy had them non stop for months after his Whipple and finally a Pharmacist recommended Brioske (sp). Its like a ground alka seltzer that you dissolve in water. Teddy took it once and the hiccups left and never came back. You can get it at CVS or Walgreens and it comes in a blue bottle. He also used it to settle his stomach when needed. The other suggestion is a teaspoon of sugar. I hope his son has arrived.  Be strong.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Response to Alla's posting

Thank you for the tip. Still waiting... Now Marty is just mumbling, can't even tell what he is saying. Or not talking. But it touched me that he put his head on my shoulder when I was helping him to go to the bathroom...

Re: Response to Alla's posting

Alla, that was such a heartfelt gesture. Just shows that he is aware what is happening, you will always cherish that one. This is that time when we make these moments to cherish, I still cherish many like that. I remember being in the kitchen and Teddy came ambling in without the walker. I said, "where is the walker? If you fall we will really have problems". He answered with outstretched arms, "I just wanted to dance with you" and he started singing our song and dancing with me. Bittersweet I know but oh how those moments get us threw later. If you don't mind I want to share a poem with you that I wrote about 1 week prior to Teddy getting his Peace.

SENSITIVE   SENSITIVE

Time is growing closer, I can see it in his eyes,
Time is growing closer, but we’ll have no sad ‘goodbyes’.
Memories abound from our precious moments spent,
To God it is, I’m sending, the most “precious” package sent.

These last few months of knowing, we’ve made a honeymoon,
In my mind a vision of an eternal, beautiful afternoon.
He is still my charming Prince, who taught me how to love,
And someday we’ll be together, in Heaven up above.

I will see him riding stars, I will see him in the moon,
And someday you will see us dancing to our favorite tune.
He will touch my face so gently, like he’s known to do,
It’s not goodbye forever, with memories bad or few.

All our love, my sweet one, is ours to hold so tight,
Until once again together on a mystical, magic night,
We will be again united to celebrate our dance around the sun,
And know that our eternity together, has only just begun.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Response to Alla's posting

Thank you, Lainy, for sharing a beautiful poem. You are very talented!

Re: Response to Alla's posting

All about the same. Surprisingly he was more alert today - stayed awake for about 2 hours once, talked - mostly nonsense, but would answer simple questions. Sounded mostly clear as well. Yesterday he was happy to see his son - smiled big and gave him big hug, then acknowledged me and gave me hug. Even puckered up his lips for a kiss! Of course it was all mixed with some other moments of confusion, but at least had few good moments. He later thanked his son for coming.
Now my biggest dilemma is TPN. His son and his brother think we should stop it. I'm having hard time with it. Am I prolonging his suffering? Will he ever regain clear mind?
Any input is welcome! Sincerely, Alla

Re: Response to Alla's posting

Hi Alla,
           that was great that you had that time,as I said you get these windows here and there and can make the most of them.Clearly he was very happy to see his son.
        I think you should stop the TPN,I dont think it has a place,that is my nurse opinion and my carer experience opinion.I am happy you have family support to help you through this.

                              Take care    Janet

Re: Response to Alla's posting

Alla, that is such a difficult question, I want to refer you back to Marion's post on this thread of Oct 9th. I would also ask the Hospice Nurse what she thinks and put those 2 things together with seeing how he is tomorrow. I know this will be the hardest decision  you have to make but there is no right or wrong. If you pushed me against the wall and demanded an answer, after going through what I did with Teddy, my own personal self would not prolong anything. Again that is my own opinion. I used to tell my kids when making a big decision to write a list of pros and cons and see which one outweighs the other. They tell me that helped in making decisions. Well, Alla, thats the best I can do. What ever you decide will be the right decision. Be strong.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

35 (edited by marions Sun, 14 Oct 2012 19:20:55)

Re: Response to Alla's posting

Alla....this is what I have come to understand:  when our loved ones rely on us making a decision they are unable to make for themselves, they know that we do it on their behalf with their best interest at heart. 
Speaking with a nurse and/or the doctor will help you understand.  This discussion will clarify Marty's current symptoms, what it means to have these symptoms, and what possibly can be prevented with certain intervention. 
A million hugs and tons of love,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Response to Alla's posting

Thank you, all.
Looks like everybody in agreement about TPN. Interesting enough, I prepared his TPN tonight and we tried to flush his Picc line - didn't work. So tonight decision was made for me, at least for now - divine intervention? Interesting how it worked out for tonight, isn't it?
I will talk to nurse tomorrow. Thanks, Alla

Re: Response to Alla's posting

Alla, that is unbelievable! Should we dare say, divine intervention! I hope you can get some rest tonight and I was wondering how your boys are doing as well. Be strong!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Response to Alla's posting

All about the same, except hiccups intensified, a lot more often and sometimes sounds like he is struggling for breath. Therefore he is uncomfortable and keeps setting up in the bed. Asked for food once and I gave him apple sauce - ate few spoons. Nurse was able to flush his Picc line and since he asked for food, I will try TPN tonight. I just wish I could resolve the hiccups problem. Definitely can't give him sugar - he will choke. Gave him more pain meds too. He is moaning from time to time. As usual, thanks for listening.

Re: Response to Alla's posting

Alla, so sorry this is all happening. Did you ask the Nurse about Brioske that I mentioned for hiccups? I am sorry but I have to say this.....perhaps it is time to tell him that it is OK for him to go to his Peace and that you will be OK. It just seems so unfair for any human to suffer as he is suffering. I speak from experience with Teddy. I just don't know what else I can tell you except to be strong. SO, very sorry!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Response to Alla's posting

Thank you, Lainy. I've tried to google the word Brioske, but can't find it. Asked my step son (PA) - he is not sure what it is or how it could be spelled...
Thanks again!

Re: Response to Alla's posting

Alla, sorry it is Brioski Antacid. I just found it.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Response to Alla's posting

Hi Lainy and Alla,

I found it also under the spelling Brioschi. It comes in a blue bottle, so I think it is the same thing. I think my Dad took it when I was little because I remember it from long ago.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Response to Alla's posting

You are so right, Pam. We were also told it is an Italian remedy, so that fit right in with my Sicilian Teddy! Yes it is a blue bottle and not expensive either!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

44 (edited by tryingtohelp Tue, 16 Oct 2012 05:20:30)

Re: Response to Alla's posting

Thank you, ladies. I'll try to find it today. Hubby had a rough night, on his son watch. Started vomiting as well, restless, waking up almost every 30 min. I don't understand why can't it be peaceful??? He had suffered enough! Will call the nurse in a few minutes. Step son went to have a nap. So grateful to have him here, so we can split the duties and most important for moral support. The fact that he worked at military hospice few years ago gives me comfort as well.

Re: Response to Alla's posting

SENSITIVE

Alla, I am so sorry, I know exactly as I had this with Teddy. They can and must step up all the Meds for pain and nausea and agitation. So important that they are giving him as much as possible! I know I keep saying this but I am such a believer that you need to give him permission to leave. My heart is so with you all. Teddy vomited only on a Sunday morning then passed Monday night. I can only tell you that the actual passing was so very peaceful and his face had a glow and every wrinkle, even the bags under his eyes disappeared. It was, for want of better words, awesomely amazing. And strangely as time goes by the bad memories of what you are going through will lighten and all the good memories will take over. Sending so much love to you. Yes, I am so glad you have his son with you as well! And thanks so much for taking the time to chek in.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Response to Alla's posting

Thank you, Lainy. Nurse just left. Fixed the pain pump, flushed the Picc line (couldn't give him TPN again), they also called in the patch for nausea - need to get it. Hubby seems comfortable at the moment.
My 15 year old stayed home today, struggling with feelings, teary eyed. Couldn't go to school. So everybody asleep but me. Thanks again for your support!

Re: Response to Alla's posting

Alla, understand about the older son. Best place to be right now is home. Glad to hear hubby is comfortable now. This CC is only for the courageous! Since when did we ask to be THAT strong? I used to tell myself, be strong...you have time later to fall apart...but I just didn't seem to as the strength I built carried me through. Try to get some rest while he is comfortable.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Response to Alla's posting

More pain and restlessness last night. Nurse came in and increased pain meds, ordered more to try. Got briosche - hard for him to drink 4 oz, few sips didn't make a difference. He is resting now, but usually it doesn't last longer than 20 min. Hopefully increased dozes and different meds will help...

Re: Response to Alla's posting

Alla, do you knwo what pain MEDs and doses hubby is on now? Sorry the Italian remedy did not work for hiccups! My heart, my everything is just going out to you all. Love, big hugs and some Peace all combined.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Response to Alla's posting

It's dilauded 1.0 ml every hour with option to push 0.4 ml every 15 min - pain pump. Then morphine liquid 0.5 ml by mouth every 4 hrs, but nurse said every hour if needed. Plus 175mg fentanyl patches. I think the worst part is hiccups and vomiting, most likely caused by bowel obstruction. It's hard to stop, since it has to come out somehow. We tried nausea patch and phenegren suppositories - didn't seem to help. Not sure what is the name of other anti nausea stuff she called in. It's not ready
for pickup yet...
Thanks again!