Topic: Cholangiocarcinoma Awareness

Hi Everyone,
David and I started a fund through The Akron Community Foundation to raise research money for our disease. The organization featured us in their publication and also made a video of our story. The publication is mailed out to thousands. Here is the link to the video which will be on their website soon.

Www.akronist.com/Craine

We will continue to raise money and spread the word about cc.

Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Cholangiocarcinoma Awareness

Well, Lisa and David, what can I say? You are an amazingly awesome couple and every day IS a gift, true, but you are a gift to all of us! Thank you so very much, we all just love you so much!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Cholangiocarcinoma Awareness

Aren't they just the best. Lauren and I feel so blessed to have Lisa in our lives. We love you so much, dear friend. We just had lunch with her again on Monday. We are all excited as we will be meeting our very own Kris for lunch this Saturday!! Without this site, we probably would never have met. So, thank you so much CC Foundation!

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Cholangiocarcinoma Awareness

Pam, this is so exciting and wonderful! Wish I could join you! Have fun girls!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Cholangiocarcinoma Awareness

Wonderful video and fabulous thing to do!

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Cholangiocarcinoma Awareness

Awesome video and an awesome family.  You are an inspiration to all of us.

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Cholangiocarcinoma Awareness

Lisa....Kudos to you - this is fantastic. 
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Cholangiocarcinoma Awareness

Thank you for this Lisa, thank you very much indeed!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Cholangiocarcinoma Awareness

It was wonderful seeing your video and your efforts to raise funds for the purple ribbon wearers in addition to pink!  My doctor said that all the intestinal cancers outnumber Breast cancer but intestinal ones are compartmentalised do that we have pancreatic and bile duct and esophageal so that there isn't a strong number yet for research that would directly deal with our small numbers. I keep hoping to find out a direct place funds will go for research. Where will money make an impact?  The Akron fund doesn't do the direct research. Who do they link with for this?  Hoping to find out!  Maybe Marian or someone else knows where money can help directly with research. Thanks!

Re: Cholangiocarcinoma Awareness

Thank you sooo much for sharing this video.  I was thinking today that instead of getting presents for the holiday season we will be asking our kids and other familynmembers to donate to cc fund.

Re: Cholangiocarcinoma Awareness

Christerry, what an absolutely fabulous idea!!! By the way we also have FREE greeting cards on this site to help spread the word of CC. If you just go up to Get Involved at the top, then click on send an E Card there they are and very nice! My point, long way around as usual is, who ever one is sending a donation for can tell them in one of our cards. PERFECT!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Cholangiocarcinoma Awareness

We will not have raised enough money in our fund to grant for research for probably another year or two. The criteria for our fund clearly states that the money goes to cc research only. We will consult with the experts from this board, several specialists and the board of directors.

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider