Topic: Sleep, sleep, sleep

My husband has had two rounds of chemo.  He is on 2 weeks on and one week off.  This was his off week.  He is sleeping almost around the clock with only short breaks in between.  His appetite is almost nil, consisting mostly of a lot of fresh squeezed oj and boost.  Is this much sleeping common?

Re: Sleep, sleep, sleep

Hi Cristerry,

I can't tell you if this is common or not. What I can tell you are my daughter's experiences. Sometimes she is tired and sleeps so much that I don't know how she can be that tired. Other times she has more energy than me and can go out and shop for 8 hours! There is no rhyme or reason to it. I have noticed that with the chemo she is on now is getting harder to tolerate. The Oxaliplatin is ok, but the Xeloda is really tough. She is having a lot of nausea and really red, sore feet mostly toward the end of the 2 weeks she is on it. She is still nauseous today, but the feet feel better. This is her off week since last Wed. She feels hungry, eats a bit, gets full, and then feels sick. What chemo is your husband on? I would ask his doctor about it next time you see him or her. Maybe his blood counts are low and making him tired. We will probably have to have a discussion about Lauren's chemo as well. I wish you and your husband all the best and I hope he gets some more energy and an appetite.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Sleep, sleep, sleep

Hi, Pam.
He is on gemcitabine and cisplatin.  Thank you for sharing info about your daughter, Lauren.  I truly hope you get your miracle.
Cristerry

Re: Sleep, sleep, sleep

Hi Cristerry,

Yes fatigue and sleeping is quite common. My dad never had any type of chemo, but he used to sleep a lot and took a lot of naps each day during the day. I'm not saying that that is the case for everyone, but it is very common and as I said, my dads fatigue and tiredness was not down to chemo.

Here is a link on fatigue and tiredness that I hope will be of interest to you -

http://www.macmillan.org.uk/Cancerinfor … IRe98XLR9g

I hope that the chemo works well for your husband. Please let us know how it goes for him and know that we are all here for you.

My best wishes to you both,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Sleep, sleep, sleep

Hi, Gavin.
Thank you so much.  Just breezed through parts of this and already know more than I did. 
Thanks or your good thoughts, too.
Cristerry

Re: Sleep, sleep, sleep

Hi Cristerry,
I'm on gem/cis like your husband. 
This is what my experince with chemo.
I get steroid with chemo on friday. Usually I get body ache that evening.
Con't taking steroid (pills) sat and sunday so those 2 days I feel great, but monday and tuesday come I have no energy so I do sleep or lay around a lot. By wed. I feel better and thursday back to almost normal again. That's what I've been experincing for last 3 cycles.  As far as eating goes, I have no problems and sometimes I wake up middle of night hungry so I have mid night snack so I could go back to sleep(I can't sleep when I'm hungry).
I hope that gives you some idea.
Wish your husband best of luck with chemo

Re: Sleep, sleep, sleep

Thank you.  I think he has broken thru the sleep phase.  This morning his friend gave him a haircut.  His hair has been falling out, but not in clumps.  We then went for a ride thru our beautiful little town of Wickford and then to the beach for a look at the ocean which he loves having been a captain in the navy and owning a sailboat for years.  He has chemo this week and next, so will watch how things go.  He still takes compazene for nausea
Again,  Thank you

Re: Sleep, sleep, sleep

Dear Christerry, I am so glad to hear it is a much better day. That is good news!
Haircuts always make one feel better. And a beach and water are so beautiful and calming. Thanks for the good update.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.