Topic: New Member, caring for my Mom
I am so glad to have found a place to talk with others who understand this disease.
My mom who is 68, was diagnosed in June of this year with advanced, stage 4 cholangiocarcinoma. She has tumors in her liver, the pole of her right kidney, the head of her pancreas and scattered through out the biliary tract.
We began chemo in the hospital in July after she had stents placed in her liver, pancreas and one other near her gall bladder.
Chemo has been carbo/gemzar week 1 along with seeing the doctor, gemzar on week 2 and off on week 3. Other than a terrible reaction to the neulasta which she no longer gets, side effects have been minimal. She has been suffering with digestive/bowel issues which we are not sure are related to the treatment, the cancer or both.
Her 3 month scans showed REMARKABLE shrinkage in all of the tumors with the exception of the one on the kidney pole. That did shrink but not as drastically as the rest.
We saw the doctor recently and he told us that he would re-scan in December and would most likely discontinue chemo at that point. I am not sure how I feel about that. Not sure if that is normal procedure or not.
This Friday we will be seeing the surgeon who wants to remove the stents. Again not too sure how I feel about any of this, either.
We will be seeing a urologist November 5 to get a second opinion on the kidney issue. She has inflammation in the left kidney as well as the tumor on the right one.
I hope I have not rambled too much here!
I am an only child and Mom's only caregiver so finding this board has been such a blessing to me!
Thank you all