Topic: 2 years 10 months cancer free!

I went to Mayo clinic a couple weeks ago and had good scans and blood work.  (My resection was 1/5/10.)  Yay, still cancer free!!!  The only concern my oncologist, Dr. Alberts, had was that my alpha fetoprotein was a bit elevated from 6 months ago so I need to repeat that in 3 months.  I don't hear much mention of that test and I'm wondering if other cc patients have that done routinely?  I'm feeling very blessed and am grateful for every day!

Re: 2 years 10 months cancer free!

Dear Dianne, you made my weekend! YIPPEE and a BIG  Hurrah! Just keep that good news coming! Sorry, I don't have a clue what fetalprotein is!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: 2 years 10 months cancer free!

Congrats Dianne!!  Here's to many more clear scans.
Sorry, don't know anything about fetoprotein.

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: 2 years 10 months cancer free!

Diane,

I had my AFP measured once, prior to diagnosis when I was told I had an unknown liver tumor.  It was normal and no one has checked it since.  It doesn't seem to be very popular in cc patients.  Congrats on the clean scan!!!


Susie

Re: 2 years 10 months cancer free!

Dianne-Congrats!!! Clueless to AFP??!!
Lots of of prayers for a lifetime of good scans!!!-Cathy

Re: 2 years 10 months cancer free!

Dianne...congratulations on the great scan and the excellent results of the blood work. I agree with Susie, rarely do we see alpha fetoprotein mentioned on this site, post resection.  But I would trust Dr. Alberts; he has vast experience with this cancer. Enjoy life, you are in good hands. 
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: 2 years 10 months cancer free!

Dianne...wonderful, wonderful news on the clear scan praying for many more for you! My onc does alpha fetoprotein tests....its more for hepatocelluar carcinoma than CC.....my last level was 24 and if I'm getting it right abnormal is in the hundreds....wish I had more info for you!
Nancy

Re: 2 years 10 months cancer free!

Thanks to you all for your comments and well wishes!  Regarding my AFP...it is 8.7 and it should be under 6.  I read that AFP is used to monitor hepatocellular carcinoma but also can be elevated in benign liver disease.  My liver does not look "normal" in scans (it is highly vascular), but no mets.  I'll just keep following Dr. Albert's orders and hopefully the AFP value will drop.  (My liver enzyme levels remain high, and I'm told they probably always will remain high.)
Susie, I read that you went to Mayo for a consult.  I'm wondering if that is where you had your AFP done...and if Dr. Alberts was your oncologist?

Re: 2 years 10 months cancer free!

Dianne,

I just wanted to let you know that I am so happy for you. How wonderful it must be to be told you have a clean scan. All the best to you.

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: 2 years 10 months cancer free!

Dianne,
Congrats on the clean scan, this is such wonderful news.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: 2 years 10 months cancer free!

What an inspiration you are! Wonderful news and I appreciate you sharing it!

Willow