Topic: Yet another CT scan on Friday Nov 2

It's been a while since I posted anything, as nothing much has been happening. I go Friday for another CT scan to see how the cancer is responding to radiation. If you remember, I had radiation in July.
I hope and pray that it's working. Of course, last week I had diahrea that I couldn't get rid of, and after 1 call to the dr. office, I just decided to weather it out. It finally went away, but now I notice the right side of my abdomen is larger than the left, which makes me nervous. My lymph nodes are affected already, but were reacting well to radiation. So I'm hoping I have swelling for a totally unrelated thing??
Of course, scanxiety makes it all worse. I find out Monday about the results. It's only a weekend, right????
Notice I didn't even mention the tumor?? Not high on my radar at present... it's the lymph nodes I'm most worried about.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Yet another CT scan on Friday Nov 2

Kris,

Fingers crossed!  Hope you are feeling ok.  We are headed to fox chase today to see if mom can get more chemo. Hope you weathered the storm ok. 

Lauren

Re: Yet another CT scan on Friday Nov 2

Hi Kris, sorry to hear about the "runs" and I don't mean the one on 2 feet! Glad that is over. Wish you didn't have the pain now but I remember Teddy's Radman telling us that  the radiation keeps on cooking for about 3 months, so consider yourself well done. We will be awaiting the scan results as well. I also hope you "weathered" the storm well. BTW, we love a hello even if you don't have anything to report.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Yet another CT scan on Friday Nov 2

Hi Kris,

Diahrea, ugh! Glad to hear that that has passed as it were! I too hope that the radiation is working for you and hope that you get  the best possible results from your ct scan on Friday. My fingers are crossed for you and please know that i am sending you tons and tons of positive thoughts over your way.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Yet another CT scan on Friday Nov 2

Kris,

I'm wishing for nothing but great news from your CT scan. Glad your other problem is finally gone. I will be praying extra hard for you on Friday. Sorry you have to wait the whole weekend for results. That is just cruel. All the best to you, dear friend.

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Yet another CT scan on Friday Nov 2

Kris.....Hoping that the swelling will subside and for the CT results to confirm absolute, positive, lymph node response to the radiation.
Hugs and glad to know that you have weathered the storm.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Yet another CT scan on Friday Nov 2

Weathered the storm just fine. So much so that I had to dress as Sandy from Grease!! HAHA
And Pam: It would have been worse if I hadn't complaned. I would have gone yesterday or today and waited until Monday. I told them that was cruel and unusual punishment and I would never wait that long for results again!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Yet another CT scan on Friday Nov 2

Kris,

Lots of prayers for a good scan!
I make my oncologist release my scan results via MyChart prior to my appointment. I can't stand to wait and plus I would rather have some private time to deal with my emotions and organize my questions.

Take care and let us know how it goes!

Susie

Re: Yet another CT scan on Friday Nov 2

Not quite sure what to do. I thought I knew the problems Sandy left behind, but nope. The Basking Ridge office just called: they have no power and aren't expecting it for weeks...
I'm hoping they can find me a CT scan for Monday in NYC. Since I have to drive all the way there and there are no trains... this is a nightmare. I NEED to have the pump serviced: we've never gone this long before so I'm very nervous about it.
I called my Princeton onc and they have no power either......

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Yet another CT scan on Friday Nov 2

OMGOSH, Kris. Isn't there anywhere in your area you can get the CT Scan and the Pump serviced? It is so hard to believe that power would be out that long.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Yet another CT scan on Friday Nov 2

Lainy:
I figure you haven't watched the news???? The lower half of Manhattan is still out of power: Train service is non-existent, and part of NJ, NY, etc are not expecting power for days or longer.
Dr. K. is very possessive of her pump. I do have a backup Onc in Princeton, NJ but unfortunately, they don't have power either. They DO have power in another office, but I need to know if I can get in there Mon. and if they are trained in the pump.
Meanwhile, I am waiting to hear back from Dr. K's office. If they can get me a CT scan in one of the NYC offices, then it's worth the trip. But I can't need gas up there: 2 hour waits and they keep running out at the gas stations. There is no power, gas, ice, etc..... it's a mess.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Yet another CT scan on Friday Nov 2

Oh, yes, I have been watching, a real tragic catastrophe, along with missing people and etc. I was thinking that for a one time Scan and a one time cleaning you could do that closer to home considering the situation in NY.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Yet another CT scan on Friday Nov 2

I'm hoping my Princeton onc can fit me in tomorrow or Monday and they can do it... then I'll worry about the scan. It would just stink to have gone thru all this and have the pump no longer work because it ran dry.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Yet another CT scan on Friday Nov 2

Kris, best of luck on it all. As if you don't have enough to worry about!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Yet another CT scan on Friday Nov 2

Wow, Kris....I am stressed for you.  But you have continuously worked your way through obstacles and I expect for this to also turn out alright. 
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Yet another CT scan on Friday Nov 2

As of right now it's strange that I can go more than 8 weeks between pump refills... so if she can't change it to Tues. I have a CT Scan in NYC on Wed. and my pump refilled. Then I get to wait until the 19th to find out the results!! I think that's cruel and unusual punishment!!!!! I hate when they make me wait and I said that I would like to get in earlier if possible.
I'm just hoping NJ Transit is back up and running on Wed. so I can take the train instead of having to drive the whole way into NYC. Not my favorite ride. Plus there is not much in the way of gas to be found there...
And I'm friggin' tired of obstacles. I just wish something would go smoothly for a while.... I shouldn't complain because for the most part I'm healthy. But this is the 2nd or 3rd time everything has been rescheduled and such. It's frustrating. (Not counting cancelled surgeries)

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Yet another CT scan on Friday Nov 2

UGH!  So sorry you have to go through this!  I am familiar with the ride to NYC and it won't be pleasant.  Can you go to Fox Chase or UPenn?

Re: Yet another CT scan on Friday Nov 2

I don't have an onc at Fox Chase and I wouldn't want to go to U of Penn... after this, I might try to get in to see the onc at Fox Chase and see if they will get trained in the pump. That way I don't have to go all the way to NYC or Princeton every time.
I should have checked into it when I was going thru radiation there.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Yet another CT scan on Friday Nov 2

Kris know you are in my every prayer as is all the CC family.  These are extremely stressful times just for the everyday "Joe" let alone people with serious issues.  I read this just this morning, so maybe a little of light ahead for you:  Trains are running on NJ Transit's Northeast Corridor between Trenton and New York City.  Sending you peace and love.
Karen

Wishing all God's blessings!

Re: Yet another CT scan on Friday Nov 2

My heart goes out to you, Kris. You sure don't need this added stress. Prayers that everything works out for you.

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Yet another CT scan on Friday Nov 2

Not sure if this will help...  From the general discussion article I posted on the problems Sandy has caused for cancer patients. 

Here's the url for the American Cancer Society: it's www.cancer.org or call the toll free number 1-800-227-2345 and get info about what to do or where to go  in times of disaster from the cancer information specialists.

Willow

Re: Yet another CT scan on Friday Nov 2

Oh Kris,  So sorry to hear of what you are dealing with.  This is no walk in the park on a good day, but who needs all the added stress and hassles.  Hope everything works out for you.  Thinking of you and fingers crossed for easy going from here on.  Hope all goes well.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Yet another CT scan on Friday Nov 2

Sorry to hear what you are going through and up against right now Kris. Wish I could say something that would help. I sure hope that things get back to something that resembles normality in NYC and that you can get everything seen to. Fingers crossed for you.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Yet another CT scan on Friday Nov 2

Kris,

Mom uses Dr. Dotan at Fox Chase.  She is really kind and very bright.  You could email her at efrat.dotan@fccc.org.  Maybe they can help.  Best of luck!

Lauren

Re: Yet another CT scan on Friday Nov 2

Thanks Lauren. Maybe I will contact her and see her views on "co" oncing me!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.