Topic: Neuropathy

I have really bad neuropathy in my hands and feet from Gemzar/Cisplatin. I finished 6 cycles back on 09/15/12. My Dr. has prescribed Neurontin 100mg to help with the neuropathy. Has anybody taken this and how did it effect you? Any comments would be appreciated.

Thanks,

Jim

Re: Neuropathy

Jim, sorry can't help with Neuropathy except I know it is nasty! I do know you will get some responses to your question but in the meantime if you go to our Search button at the top and type in neuropathy a bunch of posts will appear on that big subject.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Neuropathy

Hi Jim,

My daughter, Lauren was on Gem/Cis for a long time and never had neuropathy. Only hair loss and low platelets. She has been on Xeloda and Oxaliplatin for some time now and did have some neuropathy with Oxaliplatin which is in the same family as Cisplatin. Just this past week she had a terrible allergic reaction as soon as she started getting her Oxaliplatin. We have not spoken to her oncologist yet to see what he is going to do about it. Her neuropathy would mostly be in her hands and her tongue bothered her too. Her feet are bothered more by her oral chemo, Xeloda. Towards the end of her two weeks on Xeloda , the bottoms of her feet are very red, sore, and peely. We put a lot of lotion on them and as soon as she stops taking the chemo they get better. I know Kris on this site had bad neuropathy, so hopefully she will comment. I hope the Neurontin helps and you are feeling better soon.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Neuropathy

Hi Jim,

I can't help with any personal experiences about neuropathy, but here is a link that my be of use and interest to you.

http://www.macmillan.org.uk/Cancerinfor … JQoFcXtR9g

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Neuropathy

Jim...this link might of use to you:
http://www.cholangiocarcinoma.org/punbb … 040#p63040

Many drugs and supplements are being tested to prevent peripheral neuropathy in patients with cancer. Results have been mixed. More research is needed. Some prevention treatments being tested are:
http://www.nccn.com/component/content/a … /1722.html
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Neuropathy

Marion,

Your NCCN link is very helpful! I will be sure and use it when doing chemotherapy teaching with patients. 
Thank you!

Karen

Re: Neuropathy

Thanks everybody for their comments.

Jim

Re: Neuropathy

You are welcome, Karen and Jim. 

Karen, given the fact that the above link is helpful to you I should then also post it in a more prominent place on our site.
Thanks for the hint, Karen

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER