• Lainy
  • Lainy
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  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
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Re: Yet another CT scan on Friday Nov 2

Hi Kris, I just love you! Even when you are so upset and at your wits end, you go and create a great new word:  CO-ONCing! Great!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Dresher, pa
  • Registered: Thu, 19 Jul 2012
  • Posts: 72

Re: Yet another CT scan on Friday Nov 2

How was your trip to NYC?  Hope you made it in with no troubles!

  • From: Willow Grove, PA
  • Registered: Wed, 06 Apr 2011
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Re: Yet another CT scan on Friday Nov 2

Tomorrow is scan day part 2..... taking train into NYC for scan and hoping the latest storm doesn't cause too much havoc....

Kris

Don't just have minutes in the day; have moments in time.
  • Lainy
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Re: Yet another CT scan on Friday Nov 2

Hi Kris, I read that the new storm, Nor'east, was not supposed to be that bad and my guess would be the wrath of any storm would not be as bad as your anger should you not be able to go!  LOL  I am so wishing that you get your scan tomorrow.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • Registered: Fri, 15 Oct 2010
  • Posts: 1,735

Re: Yet another CT scan on Friday Nov 2

Hi, Kris,

I did say a little prayer for you.

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.
  • From: Willow Grove, PA
  • Registered: Wed, 06 Apr 2011
  • Posts: 773

Re: Yet another CT scan on Friday Nov 2

The storm is supposed to stay on the shore, but we are getting snow (yes, that swear word) and I hope it isn't much. I'm not sure how strong the standing trees, etc. are are present....

Kris

Don't just have minutes in the day; have moments in time.
  • Lainy
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Re: Yet another CT scan on Friday Nov 2

SNOW? what's that? YOU HAVE AN OPEN INVITE TO COME OUT HERE AND WARM UP!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • Gavin
  • Gavin
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Re: Yet another CT scan on Friday Nov 2

Hi Kris,

Good luck for tomorrow with your scan. Tons of positive thoughts and wishes coming your way. I hope that the weather doesn't affect things for you. Snow, ugh! I so know why you call it a swear word, I'm with you on that one!

Hugs,

Gavin

  • Registered: Fri, 12 May 2006
  • Posts: 8,165

Re: Yet another CT scan on Friday Nov 2

Kris...snow?  Amazing the obstacles you have to overcome, but overcome you will. 
Hugs, fingers crossed and a tidal wave of good wishes.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • From: Uniontown, Ohio
  • Registered: Fri, 23 Sep 2011
  • Posts: 1,488

Re: Yet another CT scan on Friday Nov 2

Good luck tomorrow!! You are like the mailman. Neither rain, nor sleet, nor hail, nor snow, Kris makes it to NYC for her scans!! Go get 'em, girl.

Love you, -Pam

Hoping for a miracle for my daughter, Lauren.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Pamela's Website

  • Registered: Mon, 27 Jun 2011
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Re: Yet another CT scan on Friday Nov 2

Lots of prayers and good wishes heading your way!

Susie

  • Lainy
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Re: Yet another CT scan on Friday Nov 2

Pam, you cracked me up on the Mailman analogy. I would like to add Kris takes a lick'in and keeps on tick'in! Remember the Everready bunny? Sorry Kris we are joking at your  expense 'cause we love you.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Willow Grove, PA
  • Registered: Wed, 06 Apr 2011
  • Posts: 773

Re: Yet another CT scan on Friday Nov 2

Lainy:
It's the Energizer bunny!!! And that's hysterical 'cause that's what I call myself!! I keep going and going and going....
Thanks for the wishes everyone It sounds like the weather will hold off until I get hone. I would have made it to my scan last week, but unfortunately power outages DO stop Kris! Or at least it stops the medical center from keeping appointments.....

Kris

Don't just have minutes in the day; have moments in time.
  • Lainy
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Re: Yet another CT scan on Friday Nov 2

Kris, you are right, Everready was the battery they were advertising. Excuse my Prednisone brain! You really are the Energizer Bunny!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

40 Reply by kris00j (edited by kris00j Thu, 08 Nov 2012 08:42:28)

  • From: Willow Grove, PA
  • Registered: Wed, 06 Apr 2011
  • Posts: 773

Re: Yet another CT scan on Friday Nov 2

I got my blood work results. I may not have any control over hearing the results of the CT scan, but she can't keep me from going online to see the blood work. My CA 19-9 is down to 75!! I know that's still high, but the lowest it's ever been is 84 and most of this fight it's been over 100-800. So I'll take that as good news and run with it!
My bilirubinis 1.0 but I'm not going to worry too much because we radiated the liver and my liver tends to react with a high bilirubin and no symptoms.
11 days to go until I get the results......tick, tick, tick.

Kris

Don't just have minutes in the day; have moments in time.
  • Lainy
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Re: Yet another CT scan on Friday Nov 2

Where there is a will there is a way and it's name is Kris! Yea, sounds good to me. Can anyone get their LABS on line? Wow, I just switched here to our new Banner MDA and I have a CT Scan and LABS one day (Dec 11) and my appt. with the ONC the next for results. Got to love that!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Uniontown, Ohio
  • Registered: Fri, 23 Sep 2011
  • Posts: 1,488

Re: Yet another CT scan on Friday Nov 2

Great news on the CA19-9 Kris!! I still think it is so cruel of your Onclogist to make you wait that long for scan results. I know how sick we all feel just waiting a few hours or overnight for Lauren's scans. I cannot imagine having to wait that long. Your Oncologist is really on my s**t list!! I know she is good, but not enough compassion.

Lainy- U of M just changed their computer system this past summer. We are now able to log on and see all of Lauren's labs from when the new system was put in place. You can even see the results in graph form to see how much different results have gotten better or worse. Very convenient.

Hoping for a miracle for my daughter, Lauren.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Pamela's Website

  • Lainy
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Re: Yet another CT scan on Friday Nov 2

Pam, a that is terrific! So, it depends where you are being treated if you can pull up LABS. I think my Endocrinologist just did this with his office. Now if I could just remember where I put my password. Oh, I know! On the back of his business card.
Where else!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Willow Grove, PA
  • Registered: Wed, 06 Apr 2011
  • Posts: 773

Re: Yet another CT scan on Friday Nov 2

I can get all of my labs dating to the first blood work. And I can see specifics if I click on them. For example, if I click on the CA 19-9, I get all the results from April 2011 until now. Unfortunately, I can't get the scan results online or I would cheat and look them up.

Kris

Don't just have minutes in the day; have moments in time.
  • Lainy
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Re: Yet another CT scan on Friday Nov 2

Thanks Kris. I have an idea for you! Get on your Girlcycle, ride right in to the office and tell them you are not leaving until you get your results and then just keep reving up the motor! See, I can be a brat when I don't get my way, LOL!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Willow Grove, PA
  • Registered: Wed, 06 Apr 2011
  • Posts: 773

Re: Yet another CT scan on Friday Nov 2

HAHAHA!!!!!!

Kris

Don't just have minutes in the day; have moments in time.
  • From: Willow Grove, PA
  • Registered: Wed, 06 Apr 2011
  • Posts: 773

Re: Yet another CT scan on Friday Nov 2

I've been sitting around waiting for the onc appt. on Monday after the CT scan last week. (not really)... this morning her office called and they want me to have a PET scan before I meet with her on Monday. So now I go in tomorrow for a PET scan. My first. I'm trying to stay positive but this is the first time they've wanted more "clarity" from a PET scan so I'm scared.
Gee, things must be happening that weren't scheduled. I've been looking for a part time job. Now I have dr. appts. tomorrow, Monday, Friday, next Monday and next Tues. Then cataract surgery on Dec. 6th. How on earth do you get a  part time job in these circumstances??
I'm just praying my onc is being cautious. I wish they would give me more than a "she wants some clarification"... I know the radiation worked to kill at least part of the cells and that's what they are saying: it's hard to see the activity in the CT scan..... but it's still nerve wracking.
Just giving an update. A little venting too......

Kris

Don't just have minutes in the day; have moments in time.
  • Lainy
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Re: Yet another CT scan on Friday Nov 2

Dearest Kris, all I can say is we are anxiously standing by! Perhaps if a geat part time job came to your attention, you could tell them you want to start after Dec. 6th. I would keep searching as it will help keep your mind on other things. PET Scan is easy. Another unwanted new experience! Try to have some fun this weekend, you so deserve it.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Dresher, pa
  • Registered: Thu, 19 Jul 2012
  • Posts: 72

Re: Yet another CT scan on Friday Nov 2

Good luck Kris!  Sending positive thoughts your way. 

Lauren

  • From: Willow Grove, PA
  • Registered: Wed, 06 Apr 2011
  • Posts: 773

Re: Yet another CT scan on Friday Nov 2

Today's the day!! FINALLY!!! I hope I get to post results in the good news section!

Kris

Don't just have minutes in the day; have moments in time.