Topic: Hello and thank you for this great resource
Hello everyone. Although I just registered today, I feel as though I know some of you as I have been reading your posts for quite a while. This site has been a wonderful source of information.
My husband was diagnosed with intrahepatic cholangiocaracinoma in October 2011 and had an extensive resection. Although the surgeon achieved clear margins, there was a positive lymph node so the oncologist recommended chemoradiation followed by an additional course of Xeloda. All was well until September 2012 when a CT scan identified tumors in the liver as well as enlarged lymph nodes near the heart.
The oncologist referred my husband for a clinical trial at a large university hospital but the oncologist there determined he was ineligible because of the radiation treatments. Both oncologists have consulted since and recommended a course of Folfox to be administered at our local hospital. In addition, my husband had a new biopsy and samples of his tumors have been sent to Foundation Medicine for molecular analysis in an effort to identify the most effective chemotherapy. These results should be back within 6-8 weeks.
I have been encouraged to see that some people have managed to survive with inoperable CC for several years. I have been reading everything I can find about this disease and it seems there are promising treatments under development that may provide some hope. I'm particularly interested in Minnelide, the new pancreatic cancer drug announced by the U of Minnesota a couple of weeks ago that will begin clinical trials in 2013. My husband is currently feeling very well and our goal is to keep him alive and healthy for as long as possible in the hope that a new treatment may come along that will make a difference.
I will appreciate any additional suggestions anyone may have. Linda