• From: Alabama
  • Registered: Thu, 15 Dec 2011
  • Posts: 365

Topic: Not the best update

Some of y'all may of seen on Facebook, but I had 2 new spots show up on my liver on Pet. All the old stuff still looks dead. Dr. Javle is putting me on GTX and I will be having a biopsy soon to make sure I'm getting the best chemo.
I will update more when the full report comes out. This is about all I know right now.

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (7) and Madison (4)
http://tiffanyschwantes.wordpress.com/
I balance my life with my breath.

tiff1496's Website

  • Lainy
  • Lainy
  • Moderator
  • Offline
  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
  • Posts: 8,250

Re: Not the best update

Tiff, not what any of us wanted to hear, I am sure. Like my Teddy would say, "we now know what it is, now lets do something about it!" I am sending you a ton of prayers, good wishes and love.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Alabama
  • Registered: Thu, 15 Dec 2011
  • Posts: 365

Re: Not the best update

I know. I'm glad we know what the problem is, now it's time to move on. Overall, I still feel great other than not eating good. Not much pain. I'm a little sleepy, but that might be from the travel.

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (7) and Madison (4)
http://tiffanyschwantes.wordpress.com/
I balance my life with my breath.

tiff1496's Website

  • From: Wisconsin
  • Registered: Sun, 07 Sep 2008
  • Posts: 1,993

Re: Not the best update

Hi Tiff,

Hope things go well.  Let us know when you know more.  Thinking of you and keeping my fingers crossed.  smile

Love,
Darla

"One Day At A Time"
  • Registered: Fri, 06 Apr 2007
  • Posts: 79

Re: Not the best update

Tiffany,

I am praying that all goes well with your treatment. Your doctor sounds like he is taking good care of you. Knowing the extent of what you're dealing with will give you the best opportunity for success.

God Bless,
Missing U

  • Registered: Mon, 27 Jun 2011
  • Posts: 437

Re: Not the best update

Tiffany,

Thanks for sharing the update.  I'm sorry there isn't better news to share.  It sounds like a plan will be in place soon so please keep us posted.  Lots of prayers.

-Susie

  • From: London
  • Registered: Fri, 28 Aug 2009
  • Posts: 1,060

Re: Not the best update

Hugs to you, Tiff x

Missing my lovely sister ...

"When it gets dark enough, you can see the stars" - Lee Salk

Lalupes's Website

  • From: California
  • Registered: Mon, 20 Aug 2012
  • Posts: 285

Re: Not the best update

Tiff, 
keeping you in my thoughts for these new spots to end up dead like the others... You have come far and have had many positive turns. Your attitude is great too, focusing on one thing at a time.

Willow

Willow
  • From: Uniontown, Ohio
  • Registered: Fri, 23 Sep 2011
  • Posts: 1,492

Re: Not the best update

Tiff,

I think the GTX will be a good thing. You have done so well on your chemo so far, so adding something new might just kill those new tumors. Hoping for the best and praying for you.

Love, -Pam

Hoping for a miracle for my daughter, Lauren.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Pamela's Website

  • Registered: Fri, 12 May 2006
  • Posts: 8,210

Re: Not the best update

Tiff...sending a tidal wave of good wishes your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • Gavin
  • Gavin
  • Moderator
  • Offline
  • From: Scotland - Dundee
  • Registered: Tue, 23 Sep 2008
  • Posts: 4,883

Re: Not the best update

Stay strong Tiff. Thinking of you and sending you loads of positive thoughts as well.

And some hugs as well!

Gavin

  • From: Revelstoke BC
  • Registered: Sat, 01 Jan 2011
  • Posts: 552

Re: Not the best update

Hi Tiff,  Ditto with all the waves of positive thoughts and prayers. Glad you are feeling well. Is the "not eating good" because you don't feel like eating or when you eat you feel nauseous? Have you tried juicing or protein shakes? Lots of hugs and love to you and your family. Nancy

Loving my husband from afar.
  • From: Alabama
  • Registered: Thu, 08 Nov 2012
  • Posts: 12

Re: Not the best update

Hi Tiffany,
What part of Alabama are you in? I get treated at UAB. How were the original spots treated? I am still waiting to see the oncologist about adjuvent therapy. I hope you hear good news.

  • From: Sarasota, FL
  • Registered: Wed, 28 Dec 2011
  • Posts: 183

Re: Not the best update

Will you get treatment this Tuesday? I'm flying in to town tonite... Let me know and I can stop by to say hello!!

Derin

Husband to Eileen, Dad to Hunter (14) and Sydney (12)
Attitude is everything, you have to keep it positive! And take it one day at a time, it's all anyone can do with this disease...
  • From: Alabama
  • Registered: Thu, 15 Dec 2011
  • Posts: 365

Re: Not the best update

I have an appt at 8:30, I'm scheduled for treatment too, but will have to see how the blood looks first. I would love to see you D!

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (7) and Madison (4)
http://tiffanyschwantes.wordpress.com/
I balance my life with my breath.

tiff1496's Website

  • From: Uniontown, Ohio
  • Registered: Fri, 23 Sep 2011
  • Posts: 1,492

Re: Not the best update

Hi Tiff,

How are you doing on your new chemo? I know I talked to you on FB the day after you had your first treatment and you were ok. Did you feel ok the whole time or did side effects creep in? I hope you get to have your treatment today. Always praying for you.

Love, -Pam

Hoping for a miracle for my daughter, Lauren.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Pamela's Website