Topic: Gene therapy (gendicine)

http://www.cancertherapychina.com/index … ;Itemid=23

Re: Gene therapy (gendicine)

Have anyone tried this therapy?

Re: Gene therapy (gendicine)

Hi Mark,

I went to the website and a box popped up where you can ask questions. I asked if Gendicine could be used on someone with CC. The person said yes. I also asked if it was used in the US and they said yes. They said it was 86% effective for CC. Then they started in on wanting to know who had CC, how long, etc. and they wanted me to send Lauren's info. I said I just wanted info on this therapy and that I was happy where she got her care. I asked where they used this in the US but they didn't give me an answer. I am always skeptical about things that sound too good to be true and I have never read anything about this. Maybe our researchers Eli, Percy, or Gavin can tell us more.  It would be nice if their claims were true.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Gene therapy (gendicine)

I took a quick look. My first impressions:

1. Cancer Therapy China is a medical tourism company. They offer a number of cancer treatments that are not available outside of China. They say it right here:

http://www.cancertherapychina.com/index … Itemid=120

Many of our treatments are not fully available in other developed countries, offering China a unique leading advantage. We work with hospitals that provide a systematic combination of the following treatments to combat cancer:

In other words, you have to travel to China as a tourist in order to receive some of these treatments.

2. Gendicine is a viral gene therapy developed by Chinese company Sibiono:

http://en.sibiono.com/

The company got approval to use this therapy in China in 2003, but only for one type of cancer: head and neck squamous cell carcinoma.

An article in the Nature magazine  (year 2004):

China approves first gene therapy
http://www.nature.com/nbt/journal/v22/n … 104-3.html

An article in the Business Week magazine (year 2006):

A Cancer Treatment You Can't Get Here
http://www.businessweek.com/stories/200 … t-get-here

Sibiono looks like a serious company doing serious research. The question I have, is Gendicine approved anywhere in the world outside of China? I could not find any information. I will do more research later. My guess as of right now, Gendicine is only approved in China. Meaning that, you have to travel to China to receive this treatment.

More later...

Re: Gene therapy (gendicine)

Previous discussions about Gendicine:

http://www.cholangiocarcinoma.org/punbb … php?id=360
http://www.cholangiocarcinoma.org/punbb … php?id=304
http://www.cholangiocarcinoma.org/punbb … php?id=303
http://www.cholangiocarcinoma.org/punbb … php?id=302

I searched Gendicine therapy on PubMed. I found a few dozen studies published by Chinese doctors. They used Gendicine to treat many different types of cancer, including hepatocellular carcinoma (liver cancer). I found no published studies about cholangiocarcinoma.

Re: Gene therapy (gendicine)

Eli...thank you for retrieving these links.  They go way back to the beginning of this discussion board.  It is bittersweet, but yet so comforting to read for me.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Gene therapy (gendicine)

Marion, you are welcome (and sorry about the bittersweet part).

I'm going to put a few more links here, so they are easy to find in one place.

American Society of Gene and Cell Therapy - Educational Resources
http://www.asgct.org/general-public/edu … -resources

Gene Therapy Patient Information
http://www.genetherapynet.com/patient-information.html

Gene Therapy Developments in China
http://www.genetherapynet.com/gene-ther … china.html

Medical Tourism for Gene Therapy Treatments
http://www.genetherapynet.com/medical-tourism.html

Re: Gene therapy (gendicine)

Thanks so much, Eli. I knew you would come through. I just didn't have the patience to try to muddle through the article when I went to their website. I like that you can explain things in plain english!! Thank you so much for all you do.

Best wishes,

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Gene therapy (gendicine)

Thanks for all of the links Eli, very useful indeed.

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Gene therapy (gendicine)

Hi,everyone,
Please be careful when you read articles published originated from Mainland China. I had a very embarrassed moment at 2012 ASCO when a U S A researcher on the podium publicly denounced the result of a Chinese research article. He tried to duplicate a study result from an article published by the Chinese researcher in mainland and found out the result is false and untrue. What I am trying to say is buyer be aware.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.