Happy thanksgiving to you and all the folks from Uk who have known our cause.
Thank you for always keep in touch and let us know and up date what is happening in Uk about this tiny little known disease.
But as you,among others ,who work tirelessly for finding a better and well tolerated treatment or cure for all of us; May I also thanks for your contribution for let more people know about this disease here and in UK.
Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.