Topic: Not sure where to post? It's been over a year...
I initially posted here back in Summer 2006.
So much has happened since that time, and I feel badly about this, but I have to admit I became one of those "if you don't look it in the face, it isn't there" sort of people. I became afraid to log onto this website, fearing I'd find only the bad stuff. I'm sorry for that.
I had RFA done on my liver in Dec 2006 and my surgeon felt he'd gotten it all. My Oncologist continued to diagnose me as CUP wtih a history of Breast Cancer even though my surgeon after the RFA was as certain as he could be, that my adenocarcinoma was CC.
After the RFA in Dec 2006, I continued on Gemzar chemo through June 2007. The RFA had gotten rid of all signs of tumors in my liver and they kept me on Gemzar in hopes of sidetracking any recurrance.
I had to stop the Gemzar in June 2007 however, because of the damage to my kidneys and blood. My albumin level was very low (they first diagnosed the swelling in my entire body as Lympedema. Thank goodness for a good Nephrologist who caught it!) and my platelets and WBC haven't been the same. They are still low.
Another side effect of the chemo and perhaps the CC is I now have Diabetes II and take daily insulin injections.
I wanted to go back on Gemzar or at least start on Xeloda, but my Onc was worried my body needed the break and of what going back on treatment would do.
CT and PET Scans had been clear for exactly a year.
This past December, there was a tiny little spot barely visible to the radiologist, which he thought was the neoplasm returned.
I followed up with my Surgeon doing a 4-Phase CT last week, and it's showing a 3cm area now near where the RFA was done.
My surgeon feels I should do another RFA.
The worst thing was hearing him say he "couldn't say if this would take over in two weeks time or not". Ouch!
The dull ache in my right side had returned a few months ago. But I guess I didn't want to admit to it.
So now I'm wondering.....
Is Gemzar still effective? Is there a newer chemo to try?
My surgeon still feels this is just in my liver and hasn't spread elsewhere just yet.
I have HMO insurance. They've been pretty willing up to this point to approve whatever my doctors recommend (although they wouldn't approve Oscilloplatin<sp?>). Can anyone tell me about their experience with their own HMO's and a diagnoses of CUP?
I wish my Oncologist and Surgeon could agree. Or maybe it's good they don't. I don't know.
I'm really confused at the moment.
I've seen for myself the power of the mind and how it can help when dealing with Cancer. But it gets pretty difficult to keep those positive thoughts at times.
I'm going to my first Cancer Support Group tomorrow. But I wonder about that. I only want to surround myself with positive energy, nothing negative. I feel so selfish, and for so many years...... that just isn't me.
And I'm angry too.
Sorry for being so long winded. But thanks to anyone reading this.