Topic: One step forward - two steps back. Discouraging news.
Hello CC Family. Here is an update on our son, Jeff.
In our last post, we discussed our second surgical opinion with Dr. Rick Selby at USC. Dr. Selby wanted to do a PET/CT Scan to get additional information necessary for surgery.
Our PET/CT Scan results showed that Jeff's liver tumor has more than doubled in size since his prior MRI study 3 months ago. He has completed two rounds of Oxaliplatin and Xeloda. Obviously, this regime has not been effective for Jeff. It is as if the chemo nourished the stupid tumor! The tumor in his left lung has not changed but now there is a questionable finding in one of his lymph nodes.
We have an appointment set on Monday with our ONC at UCLA. We were supposed to start our 3rd round of chemo, but I suspect that the ONC will want to change the recipe a bit.
Dr. Selby arranged for an urgent consult with a thoracic surgeon at USC which is set for Tuesday. Our follow up with Dr. Selby is set for Friday along with an MRI of the billiary tree.
The PET/CT Scan results were a bit of a surprise to us because Jeff's symptoms and side effects have actually improved. He continues to be fatigued and has a nagging cough which seems to be his biggest complaint. We are not sure if the cough is related to the lung tumor or something else. His intermittent pain has actually improved.
In any event, Jeff continues to enjoy going to work everyday and does so with a smile on his face. He amazes me.
We knew this was an aggressive cancer, but for the liver tumor to more than double in size in a period of 3 months while on chemo, that's ridiculous! It's a good thing we had the PET/CT scan or we would have continued on the same chemo regime for another two rounds over 6 weeks while the tumor would have continued to grow.
Has anyone else seen this kind of tumor growth in such a short period of time while on chemo?
Happy Thanksgiving to all of our CCF friends and family. CCF is one of the things that we are most thankful for. Thank you CCF members for your love, support, information and personal stories.
Bob & Nancy