Topic: So frustrated
Eating has started to be an anxiety producing ordeal for both of us. Chris is hungry almost all of the time, but he's nauseated too. He's keeping very little food down and we're getting scared. He's lost 15 lbs. so far. He takes Zofran and Reglan every day, as well as Ativan. Seems like additional Ativan daily has started to help a little, but with a Fentanyl patch on and additional oxycodone for breakthrough pain, he's frequently out of it. I was hoping he would get used to the sedating effects and get back to his normal "alert" self, but not so far. Any helpful hints would be most appreciated. BTW, we're not even sure why this is happening so frequently, as his bilirubin is down to 3. When he was in the 8-12 range, he wasn't like this. The oxaliplatin/5FU combo brought it down nicely. He's been on it for a couple months so I don't think the chemo is the culprit. He's having weekly paracenteses for approx. 4-5 liters each time and he feels much better afterwards, but still vomits, so the fullness isn't the problem. So what is it???