We spent another day in hospital did nothing. Many doc came but the surgeon doc didn't come. His residence doc came and said per the CT, the tumor is very close to hepatic artery that the surgeon thinks too dangerous to do surgery. I asked recommendation, residence doc doesn't seem to have idea. said need to talk to family--us with doc. I said so where is the doc that never shows up??? I am not happy about the response at all. We still don't have much detail on what's going on. I got the CT report, and CT in CD. Will take to Sloan once my dad is discharge.
Today they said will talk to the surgeon and discover next step. oh yeah, that's the same answer I heard 2 days ago. We are here for 2 days nothing happened.
The big question I have is they put him in hospital because bilirubin is high. 3 blood tests, 15, 30, and when we were in the hospital the 1st day, it's 23. So from 30 to 23, dropped. I wounder if the stent wasn't working but now works a little? If we still need to drain bile outside of the body. I am mad that the surgeon said we need to take care of the high bilirubin; it's so high and dangerous.... ok, so we are in the hospital 3 days, this has not been taken care of or even talked about. I don't see they believe this is urgent any more?? I have a strange feeling... maybe the surgeon wants to know if my dad is operable, but found he can't do it, so he lost interested in us.
one oncologist came yesterday. said if we like to go to Sloan, it's great idea. he doesn't see confident about any helpful chemo suggestions. Said in general, it's Gem... and the 5FU? The 2 medicine I see often in this board. he said could help extend a few months live. very depressing. I asked if he can give us different treatment options to compare pros/cons/side effects.... like a menu that we can consider in restaurant? Maybe I asked too much, he said no. just Gem something and the 5FU...the standard ones. I am not comfortable with his answers that doesn't seem to work with my dad per his situation.
The radiation doctor also came yesterday. Dr. James Wong, chairman of radiation. He seems very optimistic and said the tumor is small. He has treated a lot of patients and many of them well under control, sounds very confident and promising. He said if we like to start, can do 5 days 15 min each day for while/maybe a month I forgot. I ask side effect... he said if my dad can't stand it, maybe start 2 weeks, wait 1 week. something like that. And he said his department is very high ranking, aim very well on the tumor.... Dad felt very comfortable and hopeful after heard from Dr. Wong. I hope it is so "easily" under control. I heard radiation accumulates. Some people start well, and later very weak. Not sure my dad already very weak.... can he afford to do that. But leave untreated is no good either. so tough.
Dr. Fong won't see us until my dad been discharged from current hospital. It's so waste of time staying here. I feel lost again about the next step.