Topic: Chemo after surgery with crazy CA 19-9
First of all I'm amazed by how many of us affected by this disease, and thank you for providing this mean to pour our anger, sadness, and helpful tips. I have been fighting this disease for my dad who was diagnosed on July 2012. It has been a roller coaster ride, but we have to continue to fight. I just want to say to all of families that are affected by this dreadful cancer to keep hope alive. My father was told that his cancer was inoperable, then we had this wonderful Doctor that sent my father's scan to Mayo Clinic in Rochester, and called us that his cancer was operable. We flew from CA to MN in late august 2012, and we were lucky to have him operated within 5 days. It was a miracle to us, and the recovery was an uphill battle with infection that continued to prolong his stay. There were many days when he felt horrible, but his fighting spirit never died. Dr. Nagorney of Mayo was able to remove all his tumor (negative margin), but his lymph nodes showed metastatic (3 out of 13). Now, he has chemo with gemcitabine but after 2 cycles he develops infection again around the dissected liver. He's hospitalized, and his CA 19-9 is at 3000U from 265U with a CT scan that shows he has two cysts around his troubled liver side. I wonder if anybody knows what's the frequency this cancer coming back after negative margin operation? Does CA 19-9 spike so high is an indicator for the cancer to come back? Thank you all for your inputs, and always keep on fighting!!