Topic: Bleeding??? Urgent feedback Needed

Dad is now bleeding into both drain bags!  I made here to Ohio yesterday.  He is not doing well at all.  Earlier in the weak he was severely dehydrated. He has an appt today with his onc dr but I am not sure he will make it due to the trip being an hour and a half.  I am trying to talk mom into hospice.  This is just too much.  He has been throwing up bile for two days now and he is refusing to go back to the hospital.  I think it may be time to call hospice in.

Anyway....back to the bleeding into the drain bags.  Can anyone share more on this???  The Dr doesn't seem overly concerned....is this because it is expected or happens often?  Hoping to get some feedback before speaking with the dr later today.

Re: Bleeding??? Urgent feedback Needed

Rena, I am so sorry to hear this. I would call the ONC and ask if you should take him to a local hospital ER, tell him you don't think he can make the trip in. Also ask him to put the order in for Hospice, it wouldn't hurt anything. If he calls in Hospice today they will be out tomorrow to access and interview. Please call the ONC now.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Bleeding??? Urgent feedback Needed

Thanks Lainy!  Wish me luck....Dad is insisting still on going to his appointment but I am getting ready to do the intervention speech!  I will update you later!

Re: Bleeding??? Urgent feedback Needed

I am very sorry to hear all of this, Rena. I cannot add any advice because I have not been through any of this, but I just wanted to tell you that I am thinking of all of you and I do care. Please keep us informed as to what is going on. My prayers are with you.

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Bleeding??? Urgent feedback Needed

Dear Rena,

I am real sorry to hear what your dad is going through right now and I so agree with what Lainy says about putting in that call to hospice. Hospice will be of great help with keeping your dad comfortable. You say that your dad has been throwing up bile for 2 days now and that needs to be looked at now.

I went through this with my dad as well and I know how tough a situation you are both in right now. Please keep in touch with us and let us know how things go, and please also know that we are all here for you.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Bleeding??? Urgent feedback Needed

The last few days here visiting with Mom & Dad have been very crazy, emotional and challenging. I arrived on Wednesday not knowing what to expect.  Upon first glance I could not believe how frail he had become since the end of October. It was apparent that the cancer is kicking him in the butt.  Thursday I drove Dad, mom and my grandmother over to the Cancer Hospital in Columbus.  We initially didn't think that dad could make the trip, but he insisted.  We called the Dr. that morning tonged his opinion and we decided to make the trip as he wanted to evaluate his condition if possible in order to plan his next plans for treatment. So off we went...I prayed the whole way!  Upon first glance, his Dr knew that he was severely dehydrated again and arranged for dad to be admitted to the hospital for 2 days for IV fluids and blood.  We did not go prepared for an overnight stay. I ended up staying at the hospital with dad and arranged for a nearby hotel for mom & grandma.  During his stay, Dad decided that he wanted to forego the drain tubes and get the wall stent....so he will be re-admitted tomorrow for a few days to get 2 metal stents put in. 

Last night here at home, dad started to bleed again from around his tubes. We called the home healthcare nurse and she came over.  It was determined that a clot was blocking his tubes and the blood had no where to go but out from around the tube. 

The complications that can come with this cancer are truly horrible!!!  On top of everything else, his tailbone is causing him major havoc.  We are hoping that his new pain med will help with that.  He has only had to take 3 pain pills thus far, but I talked him into taking 2 a bit ago. I hope they work. He was in tears! 

We are praying that this weeks procedure brings dad some relief!!!

Rena

Re: Bleeding??? Urgent feedback Needed

Rena, we know how hard it is and our Prayers and thoughts go out to you and your family. What did this Doctor say besides the fact Dad was dehydrated? It is so rough and scary for your Dad there just are no adequate words. Sending a ton of luck and good wishes that the wall stents will help him turn the corner!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Bleeding??? Urgent feedback Needed

Rena...had anyone mentioned metastases to the tailbone?  This could explain the extreme pain your Dad is experiencing and would demand heavy pain medication.  I also wanted to mention vomiting and lack of hydration.  My husband received IV hydration every third day; it really helped. 
With all my heart I hope for your Dad to be relieved of the horrible symptoms he is experiencing.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Bleeding??? Urgent feedback Needed

Dad finally was released from the hospital today.  On Tuesday they inserted 2 metal stents and removed his external drain tubes.  After several bags of IV fluids and blood, he is back at home tonight.  Of course it is hope that the stents can do the job!  Poor dad has been through so much in the past few weeks.  I still find it hard to believe that this disease can bring so much turmoil to lives.  Dad is starting to not act like himself!  It's so sad! 

I talked to my mom a bit ago and she said that dad is leaking bile out of the hole where the one drain tube used to be...can he get a break?

Hoping for some comfort for my dad in the days ahead!  The holidays have always been such a joyous time for our family and we are planning to all be together to cheer up my dad.  I just hope and pray that he is feeling up to it!

Rena

Re: Bleeding??? Urgent feedback Needed

Marions...no one has mentioned a mets on his tailbone...Ummm!  We did get the pain under control with pain med.  he hasn't complained much about it the past two days.  I hope it stays that way.  Thanks so much for your feedback!  I love all the knowledge here!
Rena