Topic: SENSITIVE BUT IMPORTANT - TOGETHER WE CAN DO IT
The lack of specific guidelines for Palliative Care and End of Life Care for our patients continues to expose our patients to needless suffering. Symptoms such as pain, nausea, opioid induced constipation, etc. are not addressed adequately when in fact medications and treatments are readily available.
The answer to this problem can and should be addressed by our patient community. The wisdom lays in the experience not only with each and everyone commenting on this board, but also with those individuals hesitating from officially joining in as members of the Cholangiocarcinoma Foundation. Therefore, please help us establish guidelines for a Palliative Care Directory for Cholangiocarcinoma patients and an End of Life Directory.
For non-members: please join or forward your personal information, tips, hints, complaints, etc. to:
From the bottom of my heart,