Topic: Cholangiocarcinoma.org Statistics (CONTAINS SURVIVAL STATISTICS)
I have created an Excel spreadsheet containing member data extracted from posts on the Discussion Boards. So far, I have filled in the spreadsheet for 100 patients, represented by 106 members (6 duplicates), which is about 4.6% of the database. First posts for 72% of the patients was in 2006. While this is just a small sample of the data, it provides some interesting results. In some cases, the results are compared against data from three sources,
Patient Age: Age was available for 77 of the 100 patients. Median age was 55 and the range was 25 - 89. This compares with B. 61 (23 - 85) and C. 63.6 (23.4 - 84.8) This may be statistically insignificant, but it could indicate a trend toward CC showing up at younger ages.
Patient Sex: Sex was available for 95 of the 100 patients. The M/F ratio was 1.44. A. has 1.50, B. 0.87, and C. 0.90. The ratio of men to women ages 60-64 in the 2010 US census is 0.92. Again, this may not be statistically significant, but it could indicate that CC affects men more than women.
CC Distribution: The type of CC was identified in 51 of the 100 patients as 25 Intrahepatic, 12 Hilar, and 14 Distal. There was 1 gallbladder, 1 mixed and 47 not recorded. This distribution is biased toward intrahepatic since I started filling in the spreadsheet with intrahepatic cases because I was looking for cases similar to my wife's. The percentage of intrahepatic cases should come down as more patients are added to the spreadsheet.
Resections: there were 40 resections, 3 transplants, 48 no and failed resections, and 9 unknown in the 100 patients, giving a 47% resection percentage. This compares with A. 40-50% intrahepatic, 30% hilar, and 40-50% distal. Unfortunately, many members did not report the type of cc the patient had but reported no surgery, which artifically inflated the resection rates for the patients as 65% intrahepatic, 82% hilar, and 69% distal.