Topic: Update on Jeff's surgery - sad news

Dear CC Family,
Jeff's liver resection surgery was scheduled for 12/20 (not 12/22 as I mistakenly posted earlier) with Dr. Rick Selby at USC Keck Medical Center.

Unfortunately, when Dr. Selby opened him up for the liver resection, he discovered that the tumor had spread, dramatically, since the PET/CT scan. He was closed up without the liver resection. It would appear that surgery is no longer an option for Jeff.

He will start another round of chemo, probably after the first of the year with Dr. Sadeghi at UCLA Medical Center.

We are very thankful for all of our wonderful doctors, but especially for Dr. Selby and his team who attempted surgery when others would not. The extreme aggressiveness of this tumor and the extent to which it has spread in such a short period of time is something that none of us expected.

I really have no other words at this time. I will post later.

Thank you all for your support and for being there for us.

Bob & Nancy
Jeff's Mom & Dad

Re: Update on Jeff's surgery - sad news

Dear Bob and Nancy,

I am heartsick over the news. I was so excited for all of you and had hoped and prayed for the best. I am sure you are just devastated by the news. By how you have explained Jeff's demeanor, he will probably take it all in stride with a smile on his face. Like you said, I too have no words except for I am sorry. You will all be in my prayers. Bless you.

Love and hugs,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Update on Jeff's surgery - sad news

Dear Bob and Nancy,

I am so sorry to hear this latest news about Jeff. I know that it is not what you wanted to hear at all. Unfortunately this happens all too frequently here when surgery is attempted only for it to be stopped after it has started. I do wish that at times like this there were words that would help right now.

I know you have no words right now, that is so understandable. But please know that we are all here for you and always will be.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Update on Jeff's surgery - sad news

Dear Bob & Nancy, I am so very sorry about your post. Not what you or any of use wanted. Sending prayers, thoughts and what ever can help. Will look forward to your posting when you feel up to it. I can only imagine how you are feeling. hang in, hang on and be strong.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

5 (edited by kris00j Fri, 21 Dec 2012 19:48:26)

Re: Update on Jeff's surgery - sad news

I am so sorry to hear about Jeffs aborted surgery. It's so frustrating! I hope you can all enjoy the holidays and start a new treatment plan in 2013.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Update on Jeff's surgery - sad news

Hello Nancy,

I've been thinking and praying forJeff,Bob And you all week.Thinking about Jeff's scheduled surgery for tomorrow.I was thinking that as soon as I got home and after checking on Ginger, that I was going to get online and write a post on this wonderful website wishing Jeff good luck for tomorrow.And I seen Ann at work today and she told about the devastating news.My heart just dropped with sadness.I am so sorry to hear the sad news.

Ginger and myself will continue to pray for Jeff,Bob and you.Just take one day at a time and try to make the most out of it.Hang in there and be strong.If there is anything we can do,just let us know remember we are only a few minutes away from each other.
 
    God Bless!
   
  Hugs, Hugs and more Hugs!                   Gingers Cell.       Gerardo's Cell
      Gerardo And Ginger.                        (310)567-4529.    (310)590-6246.

Re: Update on Jeff's surgery - sad news

Dear Bob and Nancy,

Words can't express how saddened we are to hear this news. I am so sorry they couldn't proceed with the surgery. The setbacks and dashed hopes that come too often with this disease are hard to absorb, and I know this is a most difficult time for you. We will continue to hold you in our thoughts and prayers, and look forward to future treatment and better times ahead.

Mark and Jeannemarie

Re: Update on Jeff's surgery - sad news

Sending healing energies to Jeff and his family.

Wishing all God's blessings!

9 (edited by PCL1029 Mon, 24 Dec 2012 22:38:32)

Re: Update on Jeff's surgery - sad news

Hi,
It may be of interest if you can take a look at this link. I am not a doctor, but as you know a patient for 44 months. Adjuvant chemotherapy whether is effective or not still in debate. But this clinical trial seems to be one of a kind and in theory,it will provide , in my opinion, a better option for us who have  cholangiocarcinoma. for it is related to  rearm our immune system and be a better fighter for such disease. But by no means  it is a " magic bullet " ; it has side effects too.

http://www.cholangiocarcinoma.org/punbb … hp?id=8678

http://www.cancer.gov/clinicaltrials/se … d=11220695

http://www.cancer.gov/ncicancerbulletin/051512/page5


God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Update on Jeff's surgery - sad news

Dear Bob and Nancy,

I just wanted to stop by and send you some support.  There are no words that I can say to make this time easier.  Five days ago my sister was taken to surgery for a resection which was halted as her cancer is too advanced than could have been known. 

Jeff clearly is very loved.

Clare

In the stars now . . . .

Re: Update on Jeff's surgery - sad news

Percy: thanks for posting this. I will define lay keep this in mind and pass it on to some of our members that may not be reading this link...
Kris

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Update on Jeff's surgery - sad news

Hi, Jeff' s mom and dad,

Just in case you are interested, I add the link to the clinical trial on the above message. Or see below for the link.

http://www.cancer.gov/clinicaltrials/se … d=11220695

Interesting clinical trial. Still recruiting patients.

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Update on Jeff's surgery - sad news

Hi,Kris,

You are always welcome.
Happy holidays  and
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Update on Jeff's surgery - sad news

Hi, everyone,

Merry Christmas and a healthy New Year.

God bless you all.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

15 (edited by PCL1029 Mon, 24 Dec 2012 23:03:38)

Re: Update on Jeff's surgery - sad news

Hi
Links relate to T cells transfer cancer treatment.
https://www.google.com/search?q=adoptiv … NIbOEA-GM:

http://www.cancer.gov/ncicancerbulletin/051512/page5

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Update on Jeff's surgery - sad news

Hello to Jeff's Mom and Dad and to Jeff,   I, like others, was saddened to hear that Jeff was not able to get a resection. On a positive note we have so many on the board now living well, and way beyond expectation without resections. Wishing you a Merry Christmas and peace and love for the New Year. Hugs. Nancy

Loving my husband from afar.