Dear Let's Live,
I am so glad that you found the CC Family and so sorry that you had to look for us.
Nancy and I are relatively new at this also. Our CC saga started with our son who was diagnosed in 8/12. We have consulted and treated with many wonderful, caring and skilled physicians at two well known institutions out here in California. However, by far, the best thing that has happened to us since this journey began was finding the CC Family. In fact, we found some of our physicians through other CC family members and their gift of sharing. I cannot imagine a more loving, caring and supportive group of people.
You will see this as your journey continues and as you continue to explore this website and read these very personal stories. You will find happy stories ans sad stories, successes and some disappointments all of which truely mirror the hills and valleys of this disease. You will find a wealth of information about the disease and the treatment.
Our thoughts and prayers are with you. Stay strong and be brave.
God Bless You.
Bob & Nancy
Jeff's Mom & Dad