• From: Washington DC
  • Registered: Wed, 17 Oct 2012
  • Posts: 122

Topic: good news: tumor markers down

Dear wonderful CC family:
After three cycles of gem/cis (at 1000mg and 70 mg/m2) my AFP marker (hepatocellular carcinoma) went from 3000 to 114 and my CA 19-9 (cholangiocarcinoma) went from 3900 to 695. (I have a cancer that has both properties) So it looks like things are happening. The PET scan showed suv values are down by between a half on the little ones and down from 14 to 4 on the big one. That's good news too. I also had an MRI but am awaiting the report. I could not wait to let you all know some good news today. I will post again the MRI hopefully soon! Got the start of a fourth cycle today so I have been bombed again. Bring it on!!!!!

  • From: Uniontown, Ohio
  • Registered: Fri, 23 Sep 2011
  • Posts: 1,489

Re: good news: tumor markers down

Hi Holly!

That is wonderful news! I am so, so happy for you that things are going well and hopefully the MRI will show great tumor shrinkage!! Keep fighting. You are awesome!!

Love, -Pam

Hoping for a miracle for my daughter, Lauren.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Pamela's Website

  • LindaR
  • Senior Member
  • Offline
  • From: Downers Grove, IL USA
  • Registered: Fri, 02 Nov 2012
  • Posts: 63

Re: good news: tumor markers down

Hi Holly.  I remember you were having a scan around the same time as my husband and I'm glad you are both starting the year with positive news.  Congratulations on your results so far and best of luck with the MRI results.  Linda

  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
  • Posts: 8,224

Re: good news: tumor markers down

Dear Holly, YEA! Let's hear it for shrinkage! That is the bestest news. Keep up the great work and we will keep on cheering!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: monmouth junction, nj
  • Registered: Sat, 05 May 2012
  • Posts: 51

Re: good news: tumor markers down

WOOHOO!! So glad to hear that news, holly!

  • Registered: Fri, 12 May 2006
  • Posts: 8,174

Re: good news: tumor markers down

Holly....fantastic news.  Congratulations, these little cancer cells are retreating.
Keep it up.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • From: California
  • Registered: Mon, 20 Aug 2012
  • Posts: 274

Re: good news: tumor markers down

Congrats Holly and thank you for sharing this fabulous news!

Willow
  • Registered: Thu, 30 Sep 2010
  • Posts: 4

Re: good news: tumor markers down

Love you attitude, keep up the good work

  • Gavin
  • Gavin
  • Moderator
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  • From: Scotland - Dundee
  • Registered: Tue, 23 Sep 2008
  • Posts: 4,832

Re: good news: tumor markers down

Hi Holly,

Yay, great news, superb!!!! Thanks for sharing and fingers crossed here that the good news continues for you! I hope your fourth cycle goes smoothly, and bring it on indeed!!!!

Hugs,

Gavin

  • From: Washington DC
  • Registered: Wed, 17 Oct 2012
  • Posts: 122

Re: good news: tumor markers down

the next bombing commenced and I landed in the hospital... needed rehydrating and all meds by i.v. for 24 hrs. now out and home and much better. I believe the entire problem is that my onc gives mannitol with this dosage of cisplatin - - and it makes me have the headache from hell even morphine does not help, and I got somehow behind the 8-ball and started throwing up and then you just spiral down. Oh well, yes, at least I can just feel those darn tumors suffering with me! ha! Anyway, thank you all my friends for being the best support group EVER!

  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
  • Posts: 8,224

Re: good news: tumor markers down

Dear Holly, well, I am glad that episode is over! Not a fun Saturday. Do you have to have the Mannotil? I bet also that those tumors are crying out for help! Keep up the good work, girl, and hope the next treatment is a softer, gentler one.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Akron, Ohio
  • Registered: Mon, 11 Apr 2011
  • Posts: 413

Re: good news: tumor markers down

Holly, I am so happy for your good numbers but so sad you were sick from chemo. Kill those pesky cancer cells!
Hugs, Lisa

Everyday is a gift

lisacraine's Website

  • From: Roanoke, VA
  • Registered: Fri, 05 Oct 2012
  • Posts: 87

Re: good news: tumor markers down

So great to read about such a great news! So happy for you (not the hospital part, of course). When my husband had treatments, he found that having half a bag of fluids right after chemo and then fluids about a week after made a huge difference and prevented dehydration. As well as sipping some water or tea during chemo. Hope it helps.
Sincerely, Alla