Jen...welcome to our site. I am so sorry to hear of the painful metastases your Mom is experiencing. Jen, we have had only one inquiry re: the Burzynski Clinic and that was many years ago. Here is the link:
http://www.cholangiocarcinoma.org/punbb … hp?id=1464
Bone mets are not uncommon with this cancer and control of pain is of utmost importance.
http://www.cholangiocarcinoma.org/punbb … hp?id=1527
Others have been able to control pain with an epidural or spinal pain pump. Medications used are marcaine, dilaudid , mophine and clonidine, sometimes in combination of all.
You might also want to make an appointment with a radiologist in order to see if radiation is appropriate. Stay on it, dear Jen, and look for aggressive treatments in order to eliminate the pain your Mom is experiencing.
Hopefully others will chine in and share some of their thoughts with us also.
Please, keep us posted.
THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER