Jen....it is fairly common for us to doubt actions or non-actions and for not recognizing certain symptoms of a disease. But the reality is that this cancer is known to sneak up on people, it is silent, it mimics other discomforts, and it is difficult to detect in even the best of circumstances. Many physicians never have heard of Cholangiocarcinoma let alone treat a patient with this cancer. Jen, you must know that many others lost a loved one to this disease in a very short time after diagnoses or, they are informed of the diagnoses after their loved one has passed.
And, no, you are not going about this wrong, we are here for everyone. The members of this site understand, care, and support each other through difficult times, good times, and the in-between times.
So, stay with us, others will come along real soon and share their thoughts with you also.
THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER