Going backwards

Clarem....so sorry to hear the latest.  You may be right in your assessment of the possible abscess caused the by portal vein embolization. Attached please find a previous posting:

http://www.cholangiocarcinoma.org/punbb … 282#p12282

Tons of good wishes, please let us know, fingers are crossed for the sepsis to be conquered quickly

Hugs,
Marion

Dear clarem,

I am sorry that I can't help in solving your dilemma, but know I am praying for your dear sister. You are a wonderful advocate for your sister and I am sure you will get to the bottom of what is making her feel bad. Much love and many hugs being sent to both of you.

-Pam

Thank you Marion, Lainy, Pam and Willow for all your support.  I got a message to her consultant this morning and things have moved forward for the better.  She got transferred this evening to the hospital where her surgery was done and where her Hepatic surgeon is based. 

The blood cultures show she has an ecoli infection and the CT that was done today shows a collection of fluid under the liver.  Not sure what the fluid collection is yet but the plan is to drain the collection tomorrow.  I will hopefully get to speak to her consultant again tomorrow - he is such a lovely man and he completely took on board all my concerns when he rang me today.  She is still very ill but I feel better just knowing that she has been transferred.  Her clotting must be a bit out of whack as mum said they gave her vitamin K just before the ambulance arrived to transfer her.

Clarem....hoping for the E-Coli to clear quickly (now that she will be bombarded with antibiotics.)  Fingers crossed for continuous good news.
Hugs,
Marion

Clarem,  this sounds better.  I am hoping that now this more accurate diagnosis and aggressive treatment will bring her back to health so she can continue with treatments for CC.  Will keep you both in my thoughts and prayers,  Willow

Good evening all from a very cold Scotland.   Thank you again for all your support, well wishes and knowledge.  My sister eventually got the abscess drained today and I'm setting off tomorrow morning for the hospital to spend three days with her.  I'm hoping she'll be a whole lot better than when I saw her 10 days ago.

My mom had clear PET scan one month after chemo/radiation. Then approx. one month later, she became jaundice. CT scan showed blockage of bile ducts which was treated with two internal stents. One week later, she developed fevers. After two hospitalizations, IV ATB,  stent changes, was discharged home. Only to be readmitted again after another infection. During an attempt to place an additional external stent due to blockage of another part of the liver, she became septic and was in the ICU for 5 days. Was placed on zosyn and daptomycin, recovered, sent home for 4 weeks of IV ATB.   She's doing better but now since the external stent placed, a lot of abdominal pain. Can't win.  I hope your sister is doing better.  The bacteria that grew: e coli, VRE.  Since the clear PET scan, it has been a roller coaster ride. 

Anna

Dear Anna, I am so sorry about your Mom's trials and tribulations, as if our loved ones are not going through enough already! When Teddy had his Ecoli krap, they put him on Levaquin and it did the job very quickly. Hoping to hear Mom is doing much better in your next report. BTW, does the Doc know she is in pain from the new stent? Teddy also had an external stent but never any pain. I would let the ONC know. Again wishing and sending good juju for Mom!

Clarem,
I am so sorry to hear that your sister is still struggling to get through the infection/abscess. That's a serious complication from that portal vein embo. It must break all if your hearts that she can't care for her tiny daughter. Thank goodness she is home now and hopefully in a more comfortable place than the hospital. Also wonderful that she has so much support from family and friends. I'm sure you could use support as well to get through so many unexpected turns. I pray your sister recovers from the infections and regains strength to move on to chemo if that is her goal.
Sincerely, Willow