Topic: Jaundice and Complications

Hello, I am new to the site but the daughter of a CC patient. First diagnosis was 2004, with liver resection and chemo. 2010 reoccurance, inoperable with cyber knife radiation and chemo of Gym/Cis, non active MRI to current. After my mom and I visited the other day I noticed yellowing of the skin and eyes, not alot but enough that I would notice. I've been reading alot of the post and I understand that everyone is different. I am nervous and have no idea what to expect now. I think I assumed that this would be a process of the cancer spreading etc, not liver function problems. Any words of advice would be much appreciated.

Re: Jaundice and Complications

Dear Mowissa, welcome to our extraordinary family but sorry you had to find us. Wow! Your Mother is truly a Survivor as 9 years is something to be heralded. I know the yellowing can be very upsetting but sometimes it can mean a blockage or infection. I would get her in to see her ONC right away and go from there. Try not to jump to conclusions. I know, easier said than done but only the ONC can tell you what is going on after LABS and perhaps a CT Scan. Try to be very strong and please keep us advised as we truly care.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

3 (edited by marions Sat, 12 Jan 2013 13:15:38)

Re: Jaundice and Complications

Mowissa...welcome to our site. I assume that your Mom has made the call to the physician.  You would want this done asap.  Jaundice is caused by the back-up of bile in the liver and it is unlikely for it to diminish without necessary intervention.  Although fear of recurrence never leaves our mind, one has to remember that radiation has side effects also.  So, here is to hope that this new development is related to passed treatment rather than the recurring cancer.   
Tons of good wishes are heading your way - please keep us posted.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Jaundice and Complications

Lainy & Marion, our appointment with the OC is set for Tuesday. Thank you both so much for your post. Your comments have helped to bring me out of the clouds. I don't usually panic, I am calm and rational but this symptom sent me into full panic mode. I didn't realize that the jaundice could be a result of something other than my worst fear. I thank you both for offering your support and words to help fear remain harnessed for the time being. I will keep you posted on the out come of our appointment.

Some back history, she was very very healthy before diagnosis in 2004 and in 2010 was walking between 5-7 miles a day and taking no medication for any other health issues. The worst issue she has had before the jaundice is the neuropathy in her legs from the chemo.

In the event of blockage or infection, can this be treated or relieved with medicine or will this be a hospital stay etc? (I am not asking you to diagnose or anything like that, just from you past experience, in what manner is it generally treated) Again, your words and support are so very helpful.

Melissa

Re: Jaundice and Complications

Melissa.....many have to be treated with stenting for biliary drainage. This would not entail a hospital stay (generally.)  If possible, try to relax until your meeting with the oncologist.  Most likely blood test will be taken at the upcoming visit which in turn will reveal a clearer picture as to what is going on.
Hang in there.  Tons of good wishes are heading your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Jaundice and Complications

Marion,

Thank you so much. I will keep you posted on what happens. It is such a comfort to talk with others who understand.

Hugs to you as well,
Melissa

Re: Jaundice and Complications

Praying for good news on Tuesday
Hugs,
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Jaundice and Complications

Update: Blood work came back showing elevated GGT, AST, ALT, direct bilirubin of 5.5. We sent the results immediately to her specialist in Dallas, who in turn told us to leave first thing Weds and drive to Baylor University Medical Center in Dallas. We arrived yesterday around 1 and she was admitted. Ct scan with contrast this morning and now waiting for the treatment plan. They believe it is an obstructed bile duct. Her surgeon said, "we'll locate it, fix it and send you back home". Her blood work is perfect otherwise, heart rate and oxygen are all perfect. She feels good and is laughing and talking with all the hospital staff. Tumor marker shows no change. I'll let you guys know when the treatment plan is set up. And I thank each of you for your support and encouragement and helping me to stop freaking out.

Melissa

Re: Jaundice and Complications

Dear Melissa, Mom should feel much better after the stenting, if that is what they decide to do. How far do you live from Dallas? Sending best wishes that they correct the problem and send her on her way! Good luck.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Jaundice and Complications

Melissa,

I hope you mom gets better soon..  Please keep us posted on her recovery.  She sounds like a trooper!

Take care!

Susie

Re: Jaundice and Complications

Praying for a speedy recovery.
Susan

Re: Jaundice and Complications

Best wishes for you and your Mom. I hope she feels better soon.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Jaundice and Complications

Thanks everyone fpr your thoughts and prayers! M- we live about 5hrs from Dallas, so not bad but far enough to make you tired.

Susie, She's a super trooper!


Her doctor is the best! Dr. Robert Goldstein, MD, F.A.C.S, Baylor University Medical Center, Surgical Director, Pancreas Transplantation
Surgical Director, Living Donor Liver Transplantation
Hepatobiliary Surgery

Following is a plug for the DR - smile

Dr. Goldstein is a hepatobiliary surgeon and the surgical Director of Pancreas Transplantation and Living Donor Liver Transplantation at Baylor University Medical Center in Dallas. He is board certified in general surgery and critical care medicine.

He currently oversees the Baylor Liver and Pancreas Disease Center offering comprehensive evaluation and treatment for liver tumors, pancreatic tumors and chronic pancreatitis. He has a special interest in bile duct tumors and injuries.

The following treatment options are available to liver and pancreas patients at Baylor University Medical Center and Baylor All Saints Meidcal Center in Fort Worth:

Chemoembolization
NanoKnife (irreversible Electroporation)
Cyberknife®
Radiofrequency Thermal Ablation
Advanced Laprascopic Resection
TheraSpheres®
Transplantation
Total Pancreatectomy

Re: Jaundice and Complications

Melissa....fingers are crossed for good news coming your Mom's way. Melissa would you like to add Dr. Goldstein's information on a thread established by our members for our members?
http://www.cholangiocarcinoma.org/punbb … 216#p69216
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Jaundice and Complications

Update -

Marion - I posted the Dr info to the link you attached.

Mom had surgery this morning and had the blockage removed and stint put in. They have noticed a small spot on her lung. We are waiting on the Dr to come update us further. They did not seem concerned and neither does she. Her response was, "if I can live 9 years with the fastest most fatal cancer I have ever heard of, rest assured that treatment for the lung doesn't have me scared." With an attitude like that, its hard not to be optimistic.

I'll keep you guys posted, and thanks a million for the support.

Melissa

Re: Jaundice and Complications

Dear Melissa, thanks for posting about Mom's Doctor, it could help others. Glad the stenting went well and the lung spot may be just that, like a nodule or like Moms says she can get it taken care of. I LOVE her attitude! She will begin to feel good now and her yellow will slowly dissipate. My Teddy was so Jaundice when he was DX and I looked at him and said, "You know I don't like you in yellow!". Good luck on everything and I know you will both feel better when you are once again at home.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Jaundice and Complications

Thanks much, Melissa.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Jaundice and Complications

Hello everyone! It is with a heavy heart that I have to tell you my momma Sharon Kaye Smith passed away July 9th. Since January she had several stint complications, replacements, infections etc. On June 3rd we went to Dallas for a check up and we could tell over the prior few weeks, something wasn't right. The pain was to great for her to have her MRI, she was admitted. The infection from her stent had caused a perforation of the bile duct, which caused severe infection in the abdomen. After a day of Iv antibiotics and pain meds, she had several tests which showed new mets to the liver. Dr Goldstien explained her options, 6mos hospital stay, bile duct reconstruction, open wounds before they could even treat the cancer. And with how fast the mets had presented themselves from our last test 45 days prior, well, the out come of no surgery and surgery appeared to be the same. She elected to stop treatment. I brought her home to northwest Arkansas where we entered a wonderful hospice facility and 30 days later she completed her journey here on earth. My point is to remind all of the newly diagnosed and the current fighters, that she was originally diagnosed in August 2004. Almost 9 years! HOPE. PRAYER. LOVE AND FAITH. You will know when it's time, and until then, my family and I will be praying for you and yours, we will raise money and awareness of this tragic form of cancer, we are here for you and love each of you! I know now what a warrior looks like and thank God for every moment I spent with her. She was truly my best friend and always will be. She said "it's not goodbye, its only ta-ta for now". Knowing that is true helps to bring some comfort. All my love, Mel

Re: Jaundice and Complications

Dear Melissa,

I am very sorry to hear this news of your mums passing, please accept my sincere condolences. Your mum was a real fighter and she certainly fought a long battle with you by her side too. My thoughts are with you and your family right now.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Jaundice and Complications

Melissa,
Sincere condolences on the loss of your mother and thank you for sharing her story.
Willow

Willow

Re: Jaundice and Complications

Dear Melissa,

Passing my condolences to you and your family.  My thoughts are with all of you

Louie

Re: Jaundice and Complications

Dearest Melissa, I am so very sorry to read of your Mother's Passing. From what you write she must have been a remarkable woman full of grace and dignity. In time your best memories will overtake her journey to the other room. She will always be around you and you will find so much comfort in her presence. My sincere condolences to you and your family.

Those we love must someday pass beyond our present sight…
They leave us and the world we know without their radiant light.
But we know that like a candle their lovely light will shine
To brighten up another place more perfect…more divine.
And in the realm of Heaven where they shine so warm and bright,
Our loved ones live forevermore in God’s eternal light.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Jaundice and Complications

Dear Mel,

I am sorry to read that your mum passed.  Despite your loss, your kindness in considering those battling this disease and wanting to give them hope and a reason to fight is very touching.

Your mum must be looking down feeling incredibly proud.

X

Clare

In the stars now . . . .