Topic: PDT is helping me!
I'm receiving PDT from Dr Loren at Jefferson, and it has really improved my quality of life. I was diagnosed with CC in Dec 2011. The surgeons thought resection was feasible, but when they went in last January it was too extensive. Two internal/external stents were placed, which allowed me to keep going. But I had to carry bags, and get them replaced periodically. Then I started PDT, and after the second PDT they internalized the stents and I now have four of them. It takes two weeks to recover from the procedure, and I need to avoid the sun for at least six weeks (I'll post more on that later). But I'm able to do water sports again now, plus many other things. Big improvement!
The bad news is that Jefferson is considering dropping the PDT program due to the Affordable Care Act and their losses on the procedure. Hope that doesn't happen!
I'm also receiving chemo (cisplatin and gemzar) in between the PDT treatments. Will start my 12 th cycle next week.