Topic: New Member
Boy Im sure glad I found you. You all sound so supportive and I have found
so much information here.
I was diagnosed this summer with Intrahepatic Chloangiocarcinoma. I had
only one tumor 4 x 4cm in right lobe of liver. I was a medical technolgist for
years and active with HLA tissue typing programs on several transplant units
and of course I got Hep B and C. Docs were watching me for garden variety
liver cancer; so, we were all shocked when I was diagnosed with ICC. They said I must have had tumor for at least 5 years and it was just showing up
on ultrasound. All lab tests were normal; but, I felt pretty awful.
I had right lobe of liver removed at Carolinas Med Center on Sept 17.
Started Adjuvant chemo gemzar/cisplatin Oct 16th and was back at work
Oct 22nd. They got all of the tumor with no mets anywhere and lymph nodes were clear. Im finished with chemo end of Feb then first CT scan in March or early April.'
Here is my question. Have any of you had continuing chemo after clear CT scan? My oncologist pretty much blew me off when I brought it up to him. to say Im worried is an understatement. I read here that one of you has had 5 recurrances and that the recurrance rate of ICC is very high--75% or so. Im going to speak to my surgeon about it. I want to feel like Im doing everything I can.
Any suggestions will be very much welcome!!!
Im still working at almost 70 at very high stress job and I live alone with 3 very active whippets. We hike a lot even when Im tired. I don't plan to go down without a fight and all of you have really inspired me!!!
Thanks so much ,