Topic: New member introduction
Good morning. I was diagnosed with Cholangiocarcinoma Dec 10, 2012 while in FL and flew back to NJ for further evaluation. On Dec 26 I had surgery for resection but could not complete due to abdominal/pelvic turmors. I am now on chemo at MSKCC (in NJ) Gem/Cis and after 2 weeks doing well. No side effects yet and energy is returning.
I dealt with the initial shock in Dec. and handled the legal matters necessary so I can focus on living with this disease for many years. I know that cure is unlikely but co-existence will suffice. My family has been by my side from the start of this journey and that is my source of strength and hope.
Not one to dwell on medical details...just want to give & receive encouragement, support and news. We are starting to research clinical trials and orphan drugs for future treatment when/if that becomes appropriate.