We would just echo what Mark said. In fact, Mark provided us with information about USC and Dr. Rick Selby. We share Mark's view that USC, in general, took a more aggressive approach to surgery.
Our ONC is at UCLA (Dr. Sadeghi). We have had a good experience with both Dr. Sadeghi and his office staff. Our son has been treated at UCLA for years for unrelated urological issues and extensive urological surgery. It was through that connection that we were referred upstairs to Dr. Sammy Saab and then to Dr. Busuttil. Both liver surgeons were very nice and as Mark advised, they are world renown. In our son's case, they declined surgery. We took Mark's advice and consulted with Dr. Selby at USC. He was wonderful and did proceed with surgery.
As you know, this is a very aggressive disease. This is certainly true with our son's situation. In the relatively sort period of time between the initial diagnosis, diagnostic testing and actual performatnce of the surgery, the disease had spread to the point where the liver resection could not be completed, so the surgery was terminated without the resection. We went from hope and elation to disappointment.
However, most importantly, Dr. Selby at USC gave our son the best chance of becomming disease free by agreeing to attempt the surgery. We are very grateful to Dr. Selby who attempted the surgery when others would not.
We did not change our ONC to USC. We were and are happy with Dr. Sadeghi at UCLA. However since our son's treatment options now appear to be limited to chemo, we are probably going to look for additional opinions, starting with USC.
As Mark said, you are very lucky to live in an area where we have not one, but two wonderful medical institutions with expertise in the treatment of cholangiocarcinoma.
Good Luck and God Bless You, your family and especially your father.
Bob & Nancy
(Jeff's Mom & Dad)