Topic: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

Asbestos: a hidden player behind the cholangiocarcinoma increase? Findings from a case–control analysis.

http://link.springer.com/article/10.100 … 013-0167-3

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

Gavin, this is something we could do on this site by asking our members to report prior asbestos exposure. The study presented is rather small and inconclusive at best howeer; we could do our own follow-up, as our patient community by far succeeds the 145 people analyzed retrospectively.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

Yes Marion that would be a great idea. How would we go about it though? And I guess that if we did do this then we could get Helen and all of her AMMF members to participate as well? Just a thought but I am sure that Helen would like to particpate as well.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

It would be so helpful to me to know how many members have had asbestos exposure.  I am getting ready to file my husband's claim with the VA.  He definitely was exposed to at least 2 species of liver flukes that cause this cancer.  BUT his military medical record documents all of the asbestos exposure he had while serving on Navy ships - lots of it.  So I am going to cite both the liver fluke and asbestos.

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

My father worked for the railroad for 41 years and was exposed to asbestos for many years. He passed away from this monster of a disease in Dec. 2014, only 3 months after being diagnosed. I too was wondering if there was a connection between the asbestos exposure and CC.

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

From the ICPR studies, 18 of the 177 responders checked that they had been exposed to asbestos either at home at at work.  This is old data so there may be more data available now.

Duke

Fighting with dignity, not desperation.
Live, Laugh, Love - One Day at a Time.
The past has passed.   "Second star to the right and straight on 'til morning."  JM Barrie

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

Carrie,

A quick google search for asbestos and CC throws up these links if you want to explore this further.

My best wishes to you,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

My dad worked for the Railroad too, and has documented exposure to asbestos ... and he has CC. As a result of that exposure he was receiving money from some type of asbestos trust fund for a  while, but it stopped ... I don't know the details.

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

That is what I blame my diagnosis on....I grew up in Libby, Montana, one of the biggest asbestos exposures super fund sites in the states!....will never know for sure but definitely my gut instinct!

10 (edited by MattReidy Sun, 22 Feb 2015 11:19:57)

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

No unusual asbestos exposure for me... I'm thinking it was all the hot dogs I used to eat.   wink

11 (edited by marions Thu, 26 Feb 2015 12:12:07)

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

Ha, ha, Matt.....you and my husband...he just loved his hot dogs.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Asbestos: a hidden player behind the cholangiocarcinoma increase? Find

Msargent1- Did your father's doctor think the two could be related??