1 (edited by marions Sat, 16 Feb 2013 18:18:01)

Topic: We have been chosen again - ASCO sponsored booth 2013

So excited and wanted to share with you the good news:

"Good Afternoon, Marion -
We are pleased to inform you that The Cholangiocarcinoma Foundation has been accepted for participation in the ASCO-Sponsored Patient Advocacy Booth at the 2013 ASCO Annual Meeting at McCormick Place in Chicago, Illinois, May 31 – June 4."

This is the third year that we have been granted this premier locacation at ASCO (American Society of Clinical Oncology) these spots are difficult to come by and I must admit that each year, as the deadline for application is approaching, I become a bit anxious. 
The ASCO-Sponsored Patient Advocacy Booth is designed to give not-for-profit patient advocacy organizations an opportunity to promote their resources and services to the professional oncology community. This booth, which holds 24 patient advocacy organizations, provides a venue where participants can display materials and where physicians and patient advocates can meet, interact, and exchange information.


Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: We have been chosen again - ASCO sponsored booth 2013

Oh My! We are CC advocates hear us roar!!!! There are no words to describe this amazing feeling!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: We have been chosen again - ASCO sponsored booth 2013

Hi, everyone,
For your info.especially the new members;besides we have volunteers like Barbara and others to man to booth all the time at each of the ASCO; we do have volunteers to attend different medical seminars(like P53 gene's relationship with different pathways of cancer); special sessions of research( like develop" organ in a chip"- ie: a" liver in a chip" to study and shorten the  time of medication research  phase I and early Phase II that  requires for approval a new drug application in stead of using human.; poster sessions for uptodate reseach results and new ideas;public and FDA policy(like REMS) and the complimentary and Alternative(CAM)sessions for newly discovered therapies that can be  compliment to the current western style medicine and  practice (like Yoga,meditation ). Last year, ASCO even added liver malignancy sessions which include experts in the surgical,oncology and  radiation fields to present their takes on treating the liver and biliary  diseases.  A lot to learn and a lot to choose from for our CCA disease.In short, we are really working hard both upfront and behind the scene  for all the medical conventions in order to get the most current medical development trends and  information of this disease and pass on to you . For all of what we do, we try to increase our connections to the world and increasing our knowledge to fight against this disease. I hope our double edge sword method will shorten the time for the discovery of a better and more effective tolerated regimen for the patients who are suffering now and the miracle cure that eluding us in the past for the future CCA patients to come.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: We have been chosen again - ASCO sponsored booth 2013

Our volunteers again will include our dear Barbara, Stella and for the very first time our Linda will be part of the team manning the booth. Percy and I are in and out, well not sure how much we will see of Percy, as he is everywhere gathering knowledge, and I will be in several closed door sessions and meetings with physicians, advocates, and those making appointments to meet in person. McCormick Hall is immense in size - sure wish we could use roller skates navigating the area - but we know that upon our return, we have lot's to share with you all.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: We have been chosen again - ASCO sponsored booth 2013

Thanks for this Marion. This is very exciting news indeed and thank you for letting us all know about it. I hope that you, Percy, Barbara, Stella and Linda will all have a great ASCO and I so look forward to hearing all about it. If I had some roller skates I would gladly donate them to the cause!

My thanks and hugs to you all,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: We have been chosen again - ASCO sponsored booth 2013

Can't wait to hear all about it. Maybe you can get those sneakers with the wheels in them smile

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: We have been chosen again - ASCO sponsored booth 2013

This is such exciting news! With all of you representing this foundation, we will be heard and results will happen. Thank you all so much!!!

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.