Topic: Update on our son, Jeff and questions
Hi CC Family,
We haven't posted an update on Jeffrey since the aborted liver resection. Since then, we have continued with cis/gem through our ONC at UCLA. He is continuing to get more fatigued. We are scaling back some of his regular activities. He continues to work at the job he loves so much but is now down to between half and three quarters time. He continues to bowl through Special Olympics on Saturdays. We are using a wheelchair to helphim when we are doing things that require alot of walking. He still has his infectiously positive outlook and attitude.
We have a second opinion set with Dr. Lenz at USC to explore any possible alternative options.
Question #1: He is due for another stint replacement in his bile duct. That doc has suggested changing to a more permanent metallic stint rather than the plastic ones which need to be replaced about every 3 months. How might this change affect his chemo regime and or other forms of alternative therapies & diagnostic tests?
Question #2: Thin clay colored stools...what is that about? Is that from the CC or the chemo? Last upper/lower GI was back in 10/12 and was clean.
Thanks for your time & consideration.
Please keep Jeff in your prayers. Along with many of you, we continue to pray for a miracle.
We love you guys.
Bob & Nancy
Jeff's Mom & Dad