Topic: Unanswered questions

Hi there,

My mom has had primary biliary schlorosis for 8 years or so, and in the beginning of February was diagnosed with cholangiocarcinoma.
It has been a little bit of a roller coaster. When they found the lump, we were told transplants weren't an option for cancer patients (she would need on in the near future or her PBS - as along with the news of cancer, she was told her primary biliary schlorosis had worsened to the point they wanted her to go and speak with the transplant board so when the time came she would be ready).
When she went for her initial appointment after it had been confirmed cancer, they told us there was a specialist who would be willing to do the transplant, and that this was her best option, so we werent even going to consider chemo or radiation.
After seeing the specialist, we were told that the transplant couldn't happen while she had cancer. They said they were most likely going to do a radical type of chemo(injected right into her liver) that would destroy the cancer, along with her liver. So then she would need a transplant.
All of this has left us confused and frustrated. What I really want to know is how chemo has effected everyone, and of course, I want to know that my mom is going to be okay.
I know no one can really give me that answer.

Chelsea

Re: Unanswered questions

Dear C & J welcome to our wonderful family but so sorry you had to join us. I guess the biggest thing that pops out to me is if you have had another opinion? We are huge believes on 2nd and 3rd opinions. This CC is too confusing and there are always too many different opinions NOT to have another one so that you can at least compare. Most important thing is to listen to your gut as it will not steer you wrong. I know I say this a lot lately but it really is true. I kow others will chime in here but I think you really need some more information. Wishing your Mom the best!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Unanswered questions

Chelsea....so sorry to read your story.  Things are a bit confusing and I agree with Lainy that someone should help you understand the situation.  From what I gather, the physician is speaking of chemoembolization which is not to kill off the entire liver rather, it is to cut off blood supply to a portion of the liver while destroying the tumor within.  Can you share a bit more information with us?
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Unanswered questions

Hi again,
I guess everything we have been told right now is speculation. The specialist did a biopsy of her cancer, and in 2 weeks we will find out what their plan is (the only reason we have to wait so long is my mom is going to Hawaii for a week - yay!). So at this point I don't really know anything else.
Thank you both for the suggestion, I will definitely talk to my mom about possibly getting a 2nd opinion.
And thanks for listening

Chelsea

Re: Unanswered questions

Hello Chelsea,
First of all, I am sending out positive thoughts to you and your mom. In case you wanted a little more information on what Marion had mentioned (chemoembolization) here is a link to a post I had placed a while back: http://www.cholangiocarcinoma.org/punbb … 449#p48449

I hope your mom has a wonderful time in Hawaii smile

~ Lourdes