I'm with Charlene. This really sucks.
Personally, my angst has been towards God. My children also receive the brunt of my frustrations.
I've been fasting and praying this week for strength and for peace; that God will carry this for me, because the weight is much too heavy. I'm being crushed and have felt as though I am losing my very soul to the anxieties and stress of this disease. It's not fair that my children need to suffer at my inability to control my tongue. I've been at the end of my rope.
I have also been reading old conference talks. Being LDS I have those right in my home, because they come in the Ensign magazine, but they are available to everyone via the internet. There are hundreds of spiritually uplifting talks that give instruction and encouragement to come to Christ.
A talk that helped me yesterday was by Dallin H Oaks titled, "He heals the heavy laden" There's one by Robert C Oaks titled, "The power of patience" and "The plan of Salvation", by L Tom Perry. I don't know how to link, but the talks come up easily on google search engine.
Fasting, praying, reading scriptures and conference talks have been incredibly strengthening and comforting, while everything else has proven to be superficial/temporary. I really have felt a relief, like I am being carried. I wish I had figured this all out months ago........Ok, I thought I had it figured out. I guess I've never needed grace on this large a scale, before.
Anyway, God Bless, loves and hugs, all my prayers, and all that jazz. Charlene, hang in there. This all must work out, somehow. My heart hurts for you along with my own pain at having no control in the direction of this ship. I can only trust that God is steering, and that He is a friendly God who wants the best for us.