Topic: Stable after 8 rounds of FOLFIRINOX

We received my husband's CT scan results today.  He was diagnosed with intrahepatic CC in October 2011 and had a resection (70 percent of the liver) followed by radiation and Xeloda.  In September 2012, he learned the cancer had returned (approximately 20 small tumors in the liver and one affected lymph node) and on November 1, he started on FOLFIRINOX.  His late December scan showed stable disease in the liver and shrinkage of the lymph node.  This scan showed no change since the January scan and his labs show normal liver function.  The doctor is pleased with these results but wants to modify the treatment at this point since FOLFIRINOX has so many side effects. My husband will continue on FU-5 and Irinotecan but will take a break from Oxaliolatin.  During our meeting, we also discussed other chemo regimens, clinical trials, chemoemolization and other steps that may be appropriate once this treatment is no longer effective.  I was very pleased that the doctor understands our desire to remain proactive.

Re: Stable after 8 rounds of FOLFIRINOX

Linda, a huge YIPPEE for your Hubby! You know that we love the word stable. It sure sounds like your ONC is on the ball and aggressive. I am so happy for you as now you can take some deep breaths of relief. Keep up all the good work and the good reports! Many thanks for this hopeful update!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Stable after 8 rounds of FOLFIRINOX

Thanks Lainy.  I just noticed I made some spelling errors - Oxaliplatin and chemoembolization.  Oh well, it was a very long day!

Re: Stable after 8 rounds of FOLFIRINOX

omgoodness, NEVER WORRY ABOUT SPELLING ON THIS SITE. I think I have made up many new words! And have you noticed how polite our members are? No one has corrected me.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Stable after 8 rounds of FOLFIRINOX

Linda...fantastic news - on to continued success.  What really surprised me, Linda, is that the Irinotecan is the lesser of the problem for your husband.  Good news indeed.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Stable after 8 rounds of FOLFIRINOX

Hi Marion.  The oncologist lowered the dosage of the Irinotecan last time and that made a big difference with respect to the diarrhea which was the biggest problem.   The doctor was more worried about the Oxaliplatin because of possible permanent damage from the neuropathy.

Re: Stable after 8 rounds of FOLFIRINOX

Thanks, Linda. 
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Stable after 8 rounds of FOLFIRINOX

Hi Linda,

This is great news, thanks so much for sharing! Stable and shrinkage, excellent! And also good to hear you say that your doctor understands your need to remain proactive in all of this. Hoping that the good news continues for you both and please remember to keep us all updated.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Stable after 8 rounds of FOLFIRINOX

Great news Linda!  You sound like you are taking the bull by the horns and staying on top of things. 

Here's hoping that I see many more posts from you in the Good News section!!

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.