Topic: Newly Diagnosed
My name is Mary. A year and a half ago I was diagnosed with Adenocarcinoma - unknown primary. My treatment consisted of chemo and radiation. Surgery was not an option because my tumor was wrapped around celiac and hepatic arteries. Back in May of 2012 another tumor popped up running along my portal vein which they called a regional spread. But as of last week, they told me the tumor is in my bile duct. They said I have Cholangiocarcinoma - stage III. Since I still can't have surgery, they are going to try Stereotactic Body Radiation Therapy (SBRT). I have to have a "spacer" put in to separate my stomach from my liver so the radiation hits only where it's suppose to. When the surgeon puts in the "spacer" he will also put in the "gold seeds" for the SBRT. I am meeting with the surgical oncologist on 3/18/13 and will get a surgery date at that time. Overall, I am feeling well with some pain but manageable without pain medication. A little overwhelmed by the new diagnosis. I was starting to believe my body flushed out the primary site since it was a year and a half since my original diagnosis. So a little disappointed, to say the least, when they said I had Stage III Cholangiocarcinoma. Am happy to have found this web site and look forward to hearing from others with similar stories.