Topic: new member
Hello. I have been reading the message boards for a couple of months now and finally decided that I need to post. My husband was diagnosed with bile duct cancer. It all started last September with pruritis. His quack of a doctor told him to drink more water and use plenty of sunscreen. I knew this wasn't right and sent him back to tell the doctor that he needed a blood test. The lab work revealed high LFT's. His bilirubin was 2.5 and his alkaline phosphatase was 727. This news sent us for an ultrasound and CT scan. Both revealed dilated bile ducts. Next we were sent to a surgeon (gall bladder removal), and 2 different Gastroenterologists. Finally we ended up in the ER in early December with jaundice and a bilirubin count over 20. They attempted ERCP and PTC at the first hospital with no success. He was then transferred to another hospital where they were able to do the PTC and put in a plastic sent and external biliary drain. FYI the gall bladder was never removed since that was not the problem. Now we go every 6 weeks to have the bag replaced. They never have gotten a biopsy which shows cancer cells. However, they tell us that it is cholangiocarcinoma and that it is very difficult to get a positive biopsy with a brushing. His oncologist told us that he is 99% sure it is CC. Has anyone else had this experience with a biopsy. I read online that biliary brushing is only about 35% effective.
I have more questions. But,will start with this. Thanks for any and all info you can give me.